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Crohn's Disease
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Posted 1/14/2016 5:00 PM (GMT 0)
My gastro's office called yesterday and said my vitamin D levels were at 27 so they are scripting for 3 months and will retest.  He wants my levels above 30.  Do you take vitamin D? What type and how much?

Second, he suggested scaling back my B-12 shots to once every 3 months.  I'm assuming also based on my bloodwork.  This concerns me, my TI was removed 30+ years ago so i don't aborb b-12.  When I first started with the shots I had nueropathy in my feet and hands as well as other symptoms. I don't want to go down that path again.  If you take b-12 injections how often do you do them?  I'm going to discuss with my primary and see what she says. 

Thanks,

 

Posted 1/14/2016 5:14 PM (GMT 0)
Hi I have low D too, I take life extensions vitamin d3 , I take 5000iu morning and night. I just started it yesterday
Posted 1/14/2016 6:21 PM (GMT 0)
I take 880 UI D3 with 1000mg Calcium a day plus have always had three monthly B12 injections.
Posted 1/14/2016 6:27 PM (GMT 0)
I take vitamin D regularly. It is really common to get low with Crohn's; even most healthy people are low, especially during the winter months. Did he give you an amount to take? They will go up 10,000/day when they try to quickly raise you, then I do a daily maintenance dose of 1000.

Also, if you go out into the sun for about 10 min before you take the vitamin D, your body will absorb more of it. Sunlight triggers the body to realize it needs to absorb vitamin D.

I don't do B12 injections, so I don't know about that. Sorry. :/
Posted 1/14/2016 6:31 PM (GMT 0)
This thread from the other Crohn's forum might be helpful to you: http://www.crohnsforum.com/showthread.php?t=48140
Posted 1/14/2016 11:29 PM (GMT 0)
I had low vitamin D and didn't want to use the script vitamin D(it's not D3 in the US). I started eating more eggs, fish oil and letting my arms/legs see the sun every once in a while. My Vitamin D level shot up to 44 after just a few months. I don't have any experience with B12 shots.
Posted 1/15/2016 11:38 AM (GMT 0)
Thanks for all your replies and tips. I've never dealt with low D before, my levels have always been good because I spend alot of time in the sun in spring and summer.

Gumby--that's a great post you sent. Learned alot.
Posted 1/15/2016 12:35 PM (GMT 0)
Hey lamb61...I have low D in my tests also. I take a generic D3 5000 iu pill a day. I definitely notice a difference with it.
As you know, I have been going through neuro stuff. I really think the b12 shots monthly were helping and wish they weren't stopped because my tests showed normal. I have not done a formal self test, but I think the neuro stuff spikes off the b12. I am going to ask for them again. The neuro said that if my b12 labs were normal he would have still considered a non-injectable form of b12 to keep things stable. I am just going to ask for the 1000ml shots again because everything felt better on them.
Posted 1/15/2016 1:33 PM (GMT 0)
D3 and H25 lab tests, funny thing Blue Cross Blue Shield balked at the Test, paying for it. First and only time last month. My research revealed that it is accepted if you are high risk, crohnes is on the list to qualify, or if you have had a resection, have that, or hypothyroid check on that one too.
D3 tabs don't seem to help
rexall D3 soft gels 1000 IU Glut free several a day when I remember.
Liquid B-12, 8000 IU when I'm burned out
B6 Tabs once in a while
T
Better Living Through Chemistry- DuPont's old line
Posted 1/15/2016 4:31 PM (GMT 0)
"Better Living Through Chemistry- DuPont's old line"

LOVE THIS! The story of our lives!!!!
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