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When would I start feeling any improvement after taking Remicade? After the loading period finishes

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Crohn's Disease
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Posted 1/23/2016 2:40 PM (GMT 0)
Asking too much about the Remicade injections but something came up at work and I need to postpone my first infusion for 3 days. Called my GI. He was very reluctant at the beginning but when I explained the conditions, he accepted. I'm now in such severe pain and I know that the first infusion won't be magical and soothe the disease that has been residing there for 9 years.
Posted 1/24/2016 12:46 AM (GMT 0)
I saw a lot of improvement with my loading doses, then I had a bit of an issue getting to the 8 week mark before some symptoms would return. After about 6 months being on it now I don't have any issues getting to the 8 week mark.

Hope you're able to get in there, postponing isn't going to help that's for sure. Getting my Remicade is my #1 priority now. Everything else can wait.
Posted 1/24/2016 2:10 AM (GMT 0)
Literally the only improvement I got was after my first infusion. It wasn't dramatic but I definitely felt better. Not to be depressing, but subsequent infusions were like having saline infusions for all the effect they had.

I think if I'd had started Remicade a few years earlier, it would have been more effective. I'd been walking around with severe pancolitis for years before I finally got onto a biologic, by which time it was obviously too late. My hospital seem determined to repeat history, but I really am in danger of going woefully off-topic, so I'll shut up now.
Posted 1/24/2016 3:51 AM (GMT 0)
I had solid poops within a month of all my loading doses.
It was surreal, like it wasn't even my body anymore. o.O
Fistula closed up 2 months after the first dose, then reopened 4 months later.
I still think the remicade does a great job, but it's never going to cure me of my fistula.
I don't know how long it's going to take you or how long it's going to last.
Just enjoy it while you can!
Do all the things you thought you couldn't handle while sick. Don't just work!
I traveled after my first loading doses and had an amazing time and I even felt strong enough to run a half marathon to raise money for CCFA. Those were an amazing six months.
Posted 1/24/2016 12:05 PM (GMT 0)
Dear all, thank you. Well, I have now a strong flare up: severe abdominal pain and 11+ bms despite taking Imodium and rifaximin. My GI said that the inflammation is severer this time and put me on dexamethasone daily injections until I start my first Remicade dose on Wednesday. This work issue has to do w my PhD and I'm supposed to study amidst all this pain and d. Interesting 😢
Posted 1/24/2016 6:15 PM (GMT 0)
I had my first abscess right when I was in the final stages of a 131 page Masters thesis.
Trust me, Stress + Crohns=terrible quality of life and an upswing in all symptoms.
You might need to consider a leave of abscence due to health problems from your phd, but only as long as you can keep your insurance!
Posted 1/24/2016 11:02 PM (GMT 0)
Gypsyfp, you're right. That last term at work was really too hectic. I decided to go on sabbatical for the coming 6 months. Hope that the stress of studying alone won't trigger my Crohn's and hopefully Remicade kicks in quickly.
Take care :)
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