Posted 2/18/2016 1:11 PM (GMT 0)
Has anyone experienced hair loss while taking Humira?
I just recently started taking Humira again about a month ago. Previously I was on it for a few months around late 2014/early 2015 (along with Imuran) after I finished a round of steroids for a few months. My hair began falling out but my gastro told me it was likely due to malnutrition; he had me start drinking Boost supplemental drinks which didn't seem to help. Then at the beginning of 2015 I lost my insurance so I quit taking all medicine, including the Humira. The hair loss stopped.
Fast forward to late 2015 and of course I'm super sick again. By this time I have a job and insurance so I went back to the gastro and after more steroids (yay), he gave me more Imuran while I waited for the Humira to be approved by my insurance. He said the Imuran might have actually been what caused the hair loss. So this time secretly I never started taking it, because obviously I didn't want my hair to start falling out again.
Well then I started on the Humira, and now, a little over a month later, my hair is falling out again, so I'm thinking it must have been the Humira the whole time : / Unfortunately I can't get into a dermatologist until early March (he previously recommended going to one when my hair fell out last time, but then it stopped so I never went), and I can't get in to see my gastro until mid-March.
Has anyone else had this experience with Humira? Intellectually I know that I should just be grateful that it helps me to feel better, especially since I've tried several other medicines before that didn't work, but it's beyond distressing to see chunks of hair coming out every day. I've started taking vitamins for hair growth but I doubt it will help as long as I'm on this medicine.
Thanks for reading and/or any and all advice! I feel so alone in my life because no one knows what to say to comfort me when I get upset about my hair, or when I feel sick- not even my brother, who also has Crohn's, because he hasn't experienced some of the things I have such as hair loss : /