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Crohn's Disease
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Posted 4/5/2016 10:23 PM (GMT 0)
I started Cimzia on Sunday, failed Entyvio, also failed Remicade, and Humira. As soon as I started 6mp, remicade, humira, and entyvio it seemed like it worked right away. Now like I said before I started Cimzia this past Sunday and I didn't get that feeling of feeling better. Don't know if that is a good sign or a bad sign, but boy I feel like sh!t. (Sorry) Does Cimzia take a while to work, what should I expect from Cimzia. Since I failed Humira and Cimzia is almost the same thing what should my expectations be. Cause right now I feel really down and out. Running out of options here, life is literally @ a standstill. I have kids and I can never do anything with them because of the way I feel, which is making me feel worse then what I already feel. Same thing with my wife, I don't go out cause I don't feel good. I wonder how long someone will put up with stuff like that. I just rambling on here with questions. If I were to get or opt for surgery isn't that a cure for Crohns???????? By all means I want that to really truly be the last option but like I said before I'm running out of them. I feel so ignorant to this disease, don't know what to do to make myself feel better.
Posted 4/6/2016 12:28 AM (GMT 0)
You'll need to get through the loading doses of Cimzia, and maybe give it a bit longer to know if it's working. I did not do well with humira or remicade, but cimzia put me in remission. Don't give up hope on it.

As for surgery, it's not a cure for Crohn's. It can come back and affect another area of your gut. I think you will need some patience to see how you do on the cimzia, which is easier said than done. Hang in there, and hopefully you'll be feeling better soon.
Posted 4/6/2016 7:34 PM (GMT 0)
I was on Cimzia for 5 months, it worked ok but wasn't great to start with by the end I was doing ok on it. I switched because I get peripheral neuropathy from the anti-tnf biologicals.

I recently switched to Stelara, it started working for me within 48 hours but wore-off after about a week. I just took my 2nd dose last night and feel pretty good today.

Surgery is not a cure but it can make you feel better, the caveat is that the inflammation can return in a different area of your GI tract.

Give it some time, you might want to try a double dose of cimzia in the future for your regular med (non-loading dose).
Posted 4/6/2016 10:33 PM (GMT 0)
Where is your Crohn's located? How much bowel would you lose if you were to have a resection tomorrow? If a few centimetres or inches, for me personally it would almost be a no-brainer: I'd have the surgery. A couple of feet or more and I'd have to really think about it.

I don't know if Cimzia will work for you or not. It will take about the same amount of time to work as the other biologics, i.e. 8 weeks or so. You could discuss with your GI the options beyond the biologics, e.g. MAP antibiotics, adacolumn apharesis, clinical trials, other drugs whose names escape me, etc. But you may need to be referred to a more specialist GI for this. In fact you almost certainly will be, unless you basically have a Crohn's researcher for a GI.
Posted 4/26/2016 9:07 PM (GMT 0)
Have to say not really feeling so well. For the past 5 days I have had a massive headache. It feels like the back of my head is going to fall out. Tons of pressure and eyes hurt. Kind of weird cause it started when I gave up coffee. I have eliminated coffee from my daily routine. Don't know if its from Cimzia or Caffeine withdrawals. I want to post my colonoscopy report so you can see, how do I do that. cause I don't know the answers you guys are asking.
Posted 4/27/2016 3:12 PM (GMT 0)
Have you tried antihistamines? It helps some people who get headaches from the biologicals. I know that it really helps PB4 with her headaches that she gets from the Humira injections.

If you have a cup of coffee does the headache go away?

Are you staying hydrated?
Posted 4/27/2016 11:21 PM (GMT 0)
I'm staying overly hydrated I think. I had a cup of tea earlier today and my headache went away. I think its from caffeine withdrawals. Another question is how do you send a message to a member?
Posted 4/28/2016 1:32 PM (GMT 0)
Have your blood pressure checked! In a drug store or at the docs office. How's your B12 levels? I keep B12 in liquid form on hand, it's cheap and easy.

Cimzia was a bust for me, after Remicade. Entocort helped but I opted for surgery. 40 cm removed about 2 1/2 years no meds. Now on Entyvio.

Can relate to you situation, give the Cimzia time. Don't let it rule you. I know it is easier said than done.

T
Better living with Chemistry.....DuPont's line
Father of 5
Posted 4/28/2016 11:57 PM (GMT 0)
Cimzia took a few months to really work for me. I have been on it now for 2 years and it's by far the best med I have taken. I did have success with Remicade and Humira for a time as well though.
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