Posted 4/26/2016 1:49 PM (GMT 0)
I would be so, so grateful for any advise regarding my lo condition.
She had an episode of EPI (Exocrine Pancreatic Insufficiency) she is being treated with Creon. She has tested negative for CF and other genetic conditions, although all strains have not been tested. And negative for celiac.
She is 3 years and 3 months weighing at 10.6KG and is classed as 'failing to thrive'. She also falls under 0.4 centile for height ranges.
We have been seeing a consultant who for a year keeps running repetitive bloods and stool samples. Her EPI is slowly raising on it's own which is why they no longer feel it's genetic. She has had constant inflammation results for stools and bloods have lately show CRP levels slightly raised.
I am pushing for the consultant to do an endoscopy because i have done so much research (as feeling that nothing much is being done apart from testing and testing!) I feel she could have Crohns. Her stools range from a 1 or a 6 on the bristol stool chart.
Any advise or help please.....please...