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Pred is making me crazy

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Crohn's Disease
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Posted 8/14/2016 8:19 PM (GMT 0)
I started entyvio and get my 2nd infusion Friday. I saw my Gi last week and he's started me on a pred taper of 5mg every 2 weeks. Thursday I dropped down, and I've been feeling insane ever since. More anxiety, irritability, insomnia, crying over little things. I have ambien and still having trouble sleeping.

I'm really tempted to get off the prednisone faster. Like taper down every week instead. I know the stepping down is probably what triggered a rise in the all the side effects...they were there before but a lot more manageable. I started pred at the beginning of July, so I haven't really been on them that long, but I'm not tolerating it nearly as well and as I moved down off the 40 mg I saw a rise in symptoms so I held steady at 25 for a few weeks.

I started a modified FODMAP diet which has helped my gut and feel like I'm finally feeling like the frequency and intensity of symptoms is improving.

Should I follow doctor's orders and stick with this taper plan?
Posted 8/15/2016 12:44 AM (GMT 0)
Ahh... I hate pred.
I tapered off a little sooner than I was supposed too and it was probably not in my best interests. But after being on pred for 4+months it was impossible for me.

That being said, I wouldn't taper too fast or you might get bumped up higher and have to redo the taper slower.
Get in touch with your doc and ask to accelerate the taper.
I found the every other method works well.
So let's say you are at 10. Do 10 mg for 10 days than for 10 days alternate between 5 and 10 and than do 5 for 10 days and than alternate between 5 and 0 for 10 days. (You might be able to even do a tiny bit faster) just ask your doc before making changes
Some find Ativan helpful while on steroids.
Your joints might start hurting as you taper but this is normal.
Good luck!
Posted 8/16/2016 1:29 AM (GMT 0)
Thanks.
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