Hi Snarf1033, how is your blood work? Any antibodies?
I can partly relate. I actually had great success on humira for nine months towards the end though I would notice I would get achy, fatigued, and sore (like I would get during s crohns flare) before my next dose but all my lab work looked okay and my GI symptoms wet okay as well. I eventually developed terrible leg spasms, weakness and stiffness in my legs and pins and needle sensations as well as other things I am forgetting. The doctors couldn't find a cause but decided it had to be the meds. I was worried about
getting off because I hate the fatigue and body aches more than any of the crohns symptoms and it seemed like the humira was still helping though in general they were getting worse each time it would happen between doses. I stopped humira and it took several weeks but the symptoms went away and the body aches lessened significantly. I was med free for several months but now on remicade and 6mp since my last flare. Both are working but I am possibly having side effects so I'm in the process of deciding what to do and it's got me quite upset because I'm dealing with the body aches and joint pains among other things(I have a post a from about
2 days ago about
it). I would suggest either one though you probably would be less likely to have a reaction to entyvio than remicade bit I don't think it's enough to rule out remicade completely, especially since it is a miracle drug for many people. Just hang in there, there will be better days. It can be a long process.
Post Edited (Labradorite) : 8/18/2016 8:18:57 PM (GMT-6)