New here. My 2 year old was just diagnosed.

I have no words except to say how sorry I am.

I'm sending positive thoughts and prayers.

If you check out the UC side, Uniform Charlie posted a study about pediatric IBD if you haven't already.

UB...I will check that study out for sure!

73...this was his second scope. His colonoscopy and endoscopy looked clear except for nodules which his doctor initially said was lymphoid hyperplasia. Biopsies came back today and the nodules were actually colitis and it's showing chronic now vs. 11 months ago when there was no evidence of chronicity. His doctor also said inflammation is showing in other parts of the digestive tract which wasn't there on his first scope and his doctor actually specializes in Pediatric IBD. I know how rare it is for someone this little to have it which is why it shocked me too. He was hospitalized at 8 months for unexplained diarrhea (10+ a day) and dehydration. No virus, bacteria, or parasites were found. His stool was positive for lactoferrin and his CRP inflammatory was 27.4 upon being admitted. At the time, the doctors he was seeing attributed it to food allergies.

Yeah, I can't imagine having to deal with Crohn's from as young as two. The only consolation is that hopefully by the time your son is grown up there will be lots of new meds and other medical advances to benefit from - maybe even one day an actual cure.

I have the pathology report in hand. Just wanted to put out there what it all says.

Terminal ileum biopsies:
-Benign superficial small bowel mucosa with lymphoid hyperplasia and focal active ileitis.
-negative for granulomas, atypical change, or malignancy

Right Colon biopsies:
-benign colonic mucosa with moderate chronic colitis with focal activity
-negative for dysplasia, malignancy, or granulomas

Left Colon biopsies:
-benign colonic mucosa with moderate chronic colitis with focal activity and focal areas of architectural distortion.
-negative for dysplasia, malignancy, or granulomas

Espophagus biopsies:
-Superficial benign squamous mucosa with focal acute esophagitis
-negative for glandular mucosa, eosinophils, or organisms

Antrum biopsies:
-fundic and antral mucosa with mild chronic antral gastritis
-negative for active inflammation, atypical change, or intestinal metaplasia

Duodenum biopsies:
-superficial small bowel mucosa with intact villous architecture with mild chronic duodenitis
-negative for foveolar metaplasia, active inflammation, atypical change, granulomas, or organisms

Comment:
The colon biopsies display chronic colitis with focal left-sided changes of chronicity in areas of activity. This may represent an inflammatory bowel disease in the appropriate setting and there is focal active ileitis favoring Crohn's disease. Correlation with the clinical and endoscopic features is suggested.

I asked the doctor and he said that his case his mild to moderate Crohn's. All of this inflammation came about within 11 months since his last set of scopes. The only thing on that was focal active colitis, mild chronic gastritis, and lymphoid hyperplasia. Visually, the doctor only saw nodules in the colon this time around. I think his Crohn's was caught very early.

As I mentioned previously, I've never seen a child diagnosed so young. I'm sure there have been many that have presented, but didn't get diagnosed until much later in life. The diagnostics have progressed with the treatment options.

Curious to know, what is the treatment plan that you're being presented with?

A top down approach is getting more popular, but I'm not sure if biologics have been used on someone so young.

Still wishing you all the best that things change for the better as your child grows.

73...He was on Apriso when his first set of scopes said focal active colitis, so when these results came back, the doctor said start it back up again. He only takes one a day though. I haven't met with the doctor yet to discuss long term treatment, diet, etc.

Emilymc...It's heartbreaking to see babies suffer. My son literally cried for his first year of life. He started around 4 weeks old with spitting up all the time. That's how we got referred to the GI. Zantac, Prilosec, cereal in the bottle...nothing worked for it. His diapers were frequent and always liquid/mucusy. They then said he had milk protein intolerance and put him on Nutramigen. The spit up subsided slightly, but the diapers were still bad. At 8 months he was hospitalized for dehydration after he had been pooping more than 10+ diarrhea diapers a day and they were like pure acid and burning his butt. In the hospital he was tested for all parasites/viruses/bacterias and all came back negative. He was slightly anemic in the hospital, had positive blood in his stool, and positive for lactoferrin. Then they put him on PurAmino (similar to Elecare). Depending on what he ate though, the mucus diapers and occult blood still returned. I bought a home kit to test for occult blood and he was literally having at least one diaper a day that had blood in it. Also, before he turned 1 he was in the 86th percentile for weight. He's now just over 2 and is in less than 20% for both height and weight. Now that he eats food, I see a LOT of undigested food in his diapers. He also gets fevers sometimes with no other symptoms--I can now attribute that to Crohn's.

Post Edited (amor1218) : 1/12/2017 9:42:11 AM (GMT-7)

Amor, your poor wee man! That all sounds so similar to my older son who has the dairy intolerance. 3 weeks of diahhorea at 10 months old with blood, almost in hospital but at all stopped once we cut out the dairy. He still has tummy issues so I'm starting to wonder if it really is dairy intolerance.

And as for my daughter, similar story too! But she's had scopes already with some unclear results. Our paediatric gastroenterologist is a bit puzzled by the results, but has put on her notes it could be the start of IBD. We've also moved overseas just to complicate things further!

I'm hoping they just magically grow out of whatever is going on, and I hope your son does too. Thank you for sharing his symptoms and your story with us xxx