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MRI pelvis to check fistula and rectum

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Crohn's Disease
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Posted 8/2/2017 12:05 AM (GMT 0)
Things haven't been going well lately. I developed LLQ and severe proctitis inflammation. So, I saw my GI yesterday. He ordered an MRI pelvis to check the healing of the fistula and explore what's wrong with my rectum. When I told him that I'm very busy now w my PhD thesis and I don't want to make any changes in medicine esp. to Remicade if the fistula has healed, he replied that don't worry I won't change anything. Then he added in a way that shocked me though he said it in a nice that he was afraid things might have gotten worse. My GI has always been of a secretive nature. It was unusual for him to say this. I'm now worried to have this MRI. I don't know what should I expect next. I exhausted all possible meds. Remicade is working for my ileitis but my proctitis is resisting all meds including cortiment which I started two months ago.
Posted 8/2/2017 1:13 AM (GMT 0)
No matter how fearful, it's good you're getting it looked into, and good that you have a proactive GI. Hopefully, there's good news, or something minor that won't require big changes. Hope things turn out well, and let us know your results.
Posted 8/3/2017 9:49 PM (GMT 0)
73monte, thank you so much. I'm scheduled to have the MRI by the end of next week. Hopefully, it turns out to be well.
Posted 8/5/2017 2:49 AM (GMT 0)
Minnie,

It's always better to be working with all the information you can get. I think its sorta hard not to worry or panic when you are having issues. Your GI sounds proactive. You never know....sometimes its just alittle hiccup....so hang in there.

Please let us know how you are.

Clo
Posted 8/6/2017 11:19 AM (GMT 0)
Clo, thank you so much. I do agree w you but what worried me, as explained, was my GI's transparency; he has always been of a secretive nature. Since 2016, after the discovery of the fistula and confirmation of CD, he started to talk about all his concerns openly and never hide them as he had used to do for 9 years.
Posted 8/6/2017 6:28 PM (GMT 0)
Minnie,

My GI likes to prepare me for the worse...so sometimes when we are doing further testing we are both a wreck.

I think that, as a physician, when you have a patient you are treating and they divert to the path less traveled it makes you more aware of the necessity of sharing every possibility so that they are prepared to make difficult choices if need be. The benefit for the patient is that you have time to get used to the ideas and plan accordingly. If I were a physician I might not share every little thing with a patient if they were doing well and there wasn't a need to burden them with information overload.

I also think, and this is just my opinion, that since many people with Crohns don't get fistulas, there wasn't that need to go down that path or share all the extra information. (Why scare someone?) Once the fistula broke thru he needed to ensure that you are aware of everything. Your illness changed and he changed his behavior to ensure you are taken care of and prepared.

He wants you to be aware, to hope for the best but to plan for the worse. Doctors care about their patients (I think my GI cried harder than I did when I had to have a colostomy. Lol..) It sounds like you have a good one.

Hang in there and please let us know how it goes.

Clo
Posted 8/6/2017 6:35 PM (GMT 0)
Thank you again, Clo. I think too my GI is trying his best and I have to admit it he has always been there to help me. I got it now and understood his sudden transformation to transparency.
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