Joint pain getting worse....fed up!!

Could it be Psoriatic Arthritis? I have crohns and have had continuing aching and pain similar to what you describe despite being in remission. My lab work and tests come back fine. After seeming a Rheumatologist she has decided its is likely PA but it doesn't have all of the symptoms. Have you seen a Rheumatologist? It might take several opinions to get one that can figure things out.

You might want to get a second opinion from a different Rheumatologist. It depends on whats causing it. I have had flare ups where certain things work and others don't and other flares where it is somewhat reversed usually depending on what illness or medication is causing it. its always a bit confusing and requires trial and error (you can check out my recent post about possible additional diagnosis). I do stretching especially for my shoulders/ upper back, light jogging though that can aggravate knees but the physical activity although hard to get going usually does a lot. Pressing on the areas of the upper back that hurt usually helps, I have a small massage ball for it- its really hard to do but helps temporarily. Cold water on my joints or just going outside for a bit in the cold air can calm things down. Sometimes alternating the warm and cold helps. I'll see if I can remember any others.