HealingWell
Search Close Search
☰

Elevated B12 levels?

Support Forums
>
Crohn's Disease
✚ New Topic ✚ Reply
❬ ❬ Previous Thread |Next Thread ❭ ❭
Posted 1/30/2018 1:11 AM (GMT 0)
So my B12 levels were checked on Saturday, and they were really elevated - around 2,000. Normally they're too low for people with Crohn's, so I thought it was weird. I already sent a message to my doctor, but Google has me *mildly* worried, so I thought I'd see if any of you have encountered this.

PS, I'm not taking any vitamin B supplements other than what's in my multivitamin.
Posted 1/30/2018 1:39 AM (GMT 0)
I run low & do injections. I think when talking to the dr. I would ask for a re-test. Labs do & can make mistakes. Dr. Google is good about causing worry for sure.
Posted 1/30/2018 2:56 AM (GMT 0)
You definitely should check with your doc and perhaps have the test re-taken. Sorry, I hate when I have to worry about this stuff, but I wouldn't ignore it without an explanation.
Posted 1/30/2018 2:25 PM (GMT 0)
Wow, I feel super dumb right now. Just realized that the gummy vitamins I'm taking that I THOUGHT were for iron are really B12. *sigh*
Posted 1/30/2018 11:13 PM (GMT 0)
Glad you found the answer though >_>.
Posted 1/31/2018 1:38 AM (GMT 0)
Still, how many were you taking per day? It still seems really high. Ask your doc just to be safe
Posted 1/31/2018 3:39 AM (GMT 0)
I too think that is too high & I would still ask for a retest, I am leaning towards a lab error.
Posted 1/31/2018 3:47 AM (GMT 0)
I was taking 1,000 per day. The doctor called me and said to just stop taking any supplements for a while.

Although I may give my GI a call. My sed rate and CRP were a tad high, especially compared to the last several months. Here are the numbers:

Sed rate:
June - 34 mm/hr
Aug - 24 mm/hr
Oct - 20 mm/hr
Nov - 40 mm/hr
last week - 41 mm/hr

CRP (same dates as sed rate):
6
less than 2.9
less than 2.9
3.9
9.4

It's the sudden uptick in CRP that has me mildly concerned. I think I'll just wait and re-run everything at the next infusion in 6 weeks, provided nothing out of the ordinary happens.
Posted 1/31/2018 6:27 AM (GMT 0)
Vitamin B-12 can be elevated from too much supplementation, but you might be a person who can not process non-methylated b-12 (cyanocobalamin).

My B-12 was as over 2,000 too. I stopped all vitamin supplements (had high folate too). It took about a year for my B-12 levels to finally get within the lab ranges. I get plenty of B-12 from my diet. If you choose to supplement, consider a methylated version.

FYI. I do not have Crohn’s (my niece does which is why I am hanging around here) but I have celiac disease and Hashimoto’s Thyroiditis.

Post Edited (cyclinglady) : 1/31/2018 8:09:48 AM (GMT-7)

Posted 2/6/2018 7:18 PM (GMT 0)
I have consistently high B-12 levels even though I don’t take any supplements containing high levels of B12. My hematologist said was not utilizing the B-12; it was being stored in my liver. This happened after I had open surgery at the Cleveland Clinic required removal of part my small intestine that had become strictured and blocked and had fallen into my lower pelvis. I also required extensive repair of the mesentery. I have also had problems with anemia since the surgery.
Any suggestions on what to do?
Posted 2/7/2018 4:06 PM (GMT 0)
What kind of anemia? What did your doctors recommend? Have you been tested for celiac disease? It can develop at anytime in your life. Something like chronic gastritis (which can be autoimmune) can cause anemia too.
Posted 2/7/2018 7:18 PM (GMT 0)
Iron Deficient anemia. I couldn’t take oral iron because stomach ulcer promblems so the hematologist did Venefer Iron infusions. One infusion every week for 5 weeks. I do have autoimmune conditions including recurring stricturing upper GI Crohn’s disease and proteinuria. The biologic medications and immunosuppressive medications all caused severe drug reaction problems. No doctor will give me anything except Prilosec and Carafate. I have to try to manage with strict diet of protein shakes and smoothies, no gluten, no dairy, organic, non GMO
Posted 2/10/2018 4:20 PM (GMT 0)
@sosick101

I am sorry that you are struggling. It looks like you are doing all the right things. Sometimes, time is what is needed. I have had a celiac disease diagnosis for five years (healed and confirmed by recent endoscopy) and diabetes. It took years to heal. Now I have chronic gastritis. I am already in a gluten free diet. I am looking at the Autoimmune Paleo diet as I read a recent small study from Scripps in San Diego testing the diet in Crohn’s and UC patients. There was over a 70% remission rate! Amazing! While I hate to further restrict my foods, I have found that my diet has helped my health and healing from celiac disease is confirmation. If balanced, the diet certainly can not hurt!

Take care.
✚ New Topic ✚ Reply