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MRI pelvis dynamic. Need advice

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Crohn's Disease
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Posted 11/29/2021 7:58 PM (GMT 0)
I have been away from HW for some time now. There were the normal ups and downs of Crohn’s and I’m still on Remicade every 8 weeks. Almost 2 months ago, I started to have rectal soiling. At the beginning my GI attributed it to the COVID 19 vaccine and mentioned that it increased inflammation. Meanwhile, I was put on pentasa supp in the morning and busesonide enema at night but these didn’t play the trick. The soiling persists. So, I’m scheduled for an MRI pelvis dynamic this Thursday to investigate the cause of soiling.
I have an unpleasant experience with MRI dynamic before as it caused incessant vomiting then. I asked my GI whether I could take Zofran injection prior to the procedure and he accepted. My question is would I be able to endure lying on my back in a closed MRI machine during the procedure while having rectal pain (my rectum is very sore because of proctitis), having the gadolinium enema in (I was informed that they will give me an enema during the procedure) and taking an intramuscular injection immediately before the MRI starts and at the same time comply with their instructions (I have to squeeze, strain and tighten the muscle). Would I be able to do all this at the same time, esp the part of having the injection and then the enema? I already feel it’s all overwhelming but unfortunately I have no other option and I’m afraid the soiling might get worse.
Posted 11/30/2021 12:18 AM (GMT 0)
Minnie,
I had the same thing done before my colostomy. They placed alot of protective sheets under me. I did soil myself and the table every time they tried to do the enema. They gave me zofran before the procedure and it helped.

I was able to follow instructions, it was uncomfortable, and I survived it. The technicians, I was fortunate to get, reassured me throughout the procedure that this was normal for them. They were used to it. They were professional and empathetic.

It was challenging and embarrassing but I survived it. Looking back the worse part about it was the embarrassment caused by the soiling.

Hang in there. You are in my thoughts and prayers.

Clo
Posted 12/6/2021 10:37 PM (GMT 0)
Clo
Thank you so much. Your words are really comforting whether here or on the other post. I really appreciate it. I had my MRI last Thursday and ever sine I have got a flare up. When they injected me with the rectal contrast, I started to have throbbing pain in my colon. When I went home, things got better but by the following day, I had diarrhea that I could not leave the toilet and severe abdominal pain to the extent that I kept screaming out of the pain. Ever sine I’m sick. I don’t know what happened.
Posted 12/7/2021 2:58 AM (GMT 0)
Minnie,

The contrast made my intestines throb for days. The diarrhea did not stop on its own. We increased Remicade to 10 and decreased the time to 6 weeks plus we added 80 mg of Prednisone. It took me 6 months to work my way back out of the intestinal flare.

The issue with the soiling for me was ulcers had destroyed parts of my sigmoid, rectum and anus. There wasn't anything there except a raw gaping wound. (Part of the reason I now have a colostomy) I did not rebound or heal. I soiled myself for 8 months or so after the MRI.. And then I developed an obstruction. By that point in time I was relieved to have the colostomy. We allowed my body to heal as much as possible, and my Colorectal Surgeon broached the idea of reconstructive surgery and a possible hook up after a year or so. Having a colostomy and not soiling myself made such a huge difference for me that I have kept the colostomy.

It's a difficult journey. The worse part was the pain and soiling myself. It really impacted me psychologically. I felt such frustration, shame, anger and grief.

Hang in there. You are in my thoughts and prayers.

Clo
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