Misdiagnosis

You do see Crohn's/Colitis mistaken for UC on occasion. They should be doing a lower scope and biopsies to get an accurate diagnosis. While Crohn's is most common in the small intestine, it can affect the colon as well.

What have biopsies shown? Sometimes they are key to differentiating between UC and Crohn's.

location of disease activity is a factor in distinguishing the two, but it's not the only thing that matters.

But in some cases, it's just really hard to tell which it is. I think something like 10-20% of cases of colitis are considered "indeterminate," meaning they can't tell whether its UC or Crohn's. And sometimes even with a definitive UC diagnosis, the presentation has some features indicative of Crohn's. It's not always black and white.

Theanxiousaries how do you know you never had anything in your small bowel? Did you have capsule endoscopy?

TAA,

You need to be more clearer here in your statements. An endoscopy is just a general term for a whole number of procedures involving placing a camera into your body. There is a capsule form which gives a whole series of visual impressions of your small intestine whereas a standard GI scope will only reach the stomach and dudodenum. Have you had CT scans and MREs of your small intestines? Unless you have had all these procedures then, as others on here are suggesting, you cannot be certain that you do not have Crohns and that there is not some activity in your small intestines.

What is being misdiagonsed here as you are suggesting? Is you GI simply saying there is a possibility that your initial diagnosis could be wrong? Or has he actually changed his / her opinion? What has caused you to believe there is a misdiagnosis? Be specific.

Also you were on of those who were quite taken by the VJ protocols during the summer. I see you posting on reddit about this. How have you gotten on with this? Has it improved things for you?