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Crohn's Disease
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Posted 9/15/2007 11:29 AM (GMT 0)
Hi,

please help me understand why I am in pain since I am not eating anything....I 'm only drinking  high protein boost drink along with ginger or menthe herbal tea...I must admit that yesterday was my first day,but I woke up with pain this morning(4am) and still in pain....I just don't understand.....

btw I upted my entocort to 9 mg(previously 3 mg but only for  a few day and gi said to increase it) and it doesn't seem to work and I don't know how long long it takes b4 it will work because I was on it before...I just started imuran but I know it will take 3 month b4 it works

any suggestion ????

than you in advance

Posted 9/15/2007 11:54 AM (GMT 0)
I would call ur GIs office someone should be on call. The GI may want u to go to the ER or maybe do a clear liqiud diet for a cpl days.
Posted 9/15/2007 2:04 PM (GMT 0)
it might be the protien drinks i know they bother me i cannot drink them.how about some soup and gotorade.that helps me.i got really sick too from the entocort.
Posted 9/15/2007 3:37 PM (GMT 0)
It takes the Entocort about 2 weeks to start working. Maybe as bad as it sounds you should switch to Prednisone. I also agree maybe those drinks are contributing to your problems. Try something different and see if that helps. Good Luck!
Posted 9/15/2007 3:58 PM (GMT 0)
If your disease is active, normal digestion can be painful depending on what is going on in there. You don't need food for the digestive process of paristalsis (waves through your intestines) to begin, the mere smell of food can set it off, so liquids can also.

I would ask the doctor for pain meds until your other meds kick in, but like someone above mentioned, entocort doesn't always work (never did for me) and sometimes takes time, prednisone may be a better option at this point for your acute attack.
Posted 9/15/2007 11:37 PM (GMT 0)
Hi Hate to say it but ginger used to bother me hoping your pain will subside soon .Best Wishes lol gail
Posted 9/16/2007 3:54 PM (GMT 0)
thank you  for your suggestion. I am going to try the clear diet and stop the ginger

Posted 9/17/2007 12:08 PM (GMT 0)
Hi I was just dx 3 weeks about and am on entocort and pentasa. What helped me greatly is starting last Friday I switched to clear liquids for the weekend, broths, jello, gatorade, etc..my pain has greatly been reduced. The gas and all the sounds though are still loud as ever! I am calling the doc today. This morning I tried rice krispies w/ rice milk. I am really missing coffee but the pain is enough to keep me from going over to the coffee pot and making some. Where was your crohns diagnosed. Mine is in terminal ileum very inflamed and ulcerated.
Stay in touch
Chris
My email is [email protected]
Posted 9/18/2007 4:52 PM (GMT 0)
Hi! i am not a doctor but from what i understand, just because you dont eat doesnt mean the pain will stop. if the disease is active, the pain will be there no matter what till your meds kick in and slow down the disease from causing the pain. i feel for you as we have all been there and still go thru it every day. hang in there, think positive and it will get better!!

Posted 9/18/2007 6:41 PM (GMT 0)
Hi Chris...my crohn's is in my terminal ileum there is aphtous ulcer in my middle left side colon b ut no infammation....I was dx in july of this year and at the time the gi said it was mild ...now I am not sure gi says its not that mild cuz I need maintenance drug.
my email is [email protected]

thanks laura lee..I try to be positive but its so hard
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