Pancreantitus Stops me From Being Able to Have Immuran

I developed pancreatitis about 6 weeks after starting Immuran.  I had abdominal pain in the mid-abdomen. It hurt to breathe or any movement of my abdominal wall. Fortunately my doctor checked my enzymes right away, realized it was early pancreatitis, and I felt better several days after. But it was a bummer not to be able to take Immuran.

** added title to your thread so more will respond you can change it yourself if this is not what you want ..lol

Take care .....LYN

Post Edited By Moderator (Howlyncat) : 9/22/2007 11:45:41 AM (GMT-6)

Ooops- I just realized this post should be under the thread re reactions to Immuran.  Can it be moved.

To answer your question Ides, I did well without Immuran for about 5 years, stayed in remission with Pentasa and Levaquin.  Had to go off Flagyl, I had a raection to that too. . For about a year and a half I've flared on and off. Have been in remission again for about 6 months, I think thanks to naltrexone and gluten free diet (or maybe it's placebo effect, I don't care so long as it works).   The next step for me wil be Remicade, but that scares me for 2 reasons- I'm not on an immunomodulator, and I have a TI stricture.  So I'm trying to hold off because after Remicade, and maybe Humira, that leave's surgery. And I'm PETRIFIED of surgery.

I was terrified of surgery too. After my CT scan they decided that I was getting worse instead of better even with meds and so decided to do surgery the next day, so at least I didn't have to anticipate it long. It was scary, but I am SO glad I did it. The surgeon said that I was so messed up he didn't know how I was functioning, plus he said there was no medicine that would have cured it. I had 12 inches of my TI removed, plus about 3 fistulas repaired, a uterine suspension (to keep it out of the way of scarring), my bladder had to be patched up from a fistula, and I had many abscesses to be removed. So there was a lot to be done, but I made it! Plus, while 7 weeks later I am still much more tired and run down than usual, at least my crohn's is gone for now... To make a long story short, surgery is worth it.