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Have questions! Flaxseed, Pentasa, Entocort, and gluten free diet.

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Crohn's Disease
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Posted 10/17/2007 10:33 PM (GMT 0)
Went to the GI today.

Asacol not working so I asked for Pentasa and entocort. He agreed.

1. Does this sound like a normal regimine?

Pentasa 1000mg 4x a day.

Entocort 9mg once a day.

2. Anyone here use Flaxseed or Flaxseed oil? I picked up some today on a recommendation. I bought the flaxseed meal. Is this gluten free?

3. I was tested for celiac today, results will be back next week. Has anyone heard of gluten free diet helping CD?

Thanks

 

Posted 10/17/2007 11:55 PM (GMT 0)
Yes, flaxseed is gluten-free.  If you do have celiac disease, you have a lot to learn but it's a little easier nowadays with new US food labeling laws and lots of good substitute products available.

I was dx 5 years ago with celiac and just last month with Crohn's.  My Crohn's is fortunately moderate without a lot of complications at the moment.  They also say I have some IBS going, which is probably true.  My GI said to ditch all the specific food advice about Crohn's and figure out what works for me.  But from what I've seen so far, much of it is the same already.

Let us know how your test results come out.  If you do have celiac, I can recommend a great forum that promotes 100% gluten-free compliance and some resources for you.  The GI also said is it very rare to have both diseases.  I hope you fare better than I am with your results!

 

Posted 10/18/2007 3:41 AM (GMT 0)
gluten free helps A LOT, at least from my experience and from others who have also done it. it helps to go to the extreme and limit processed foods and refined sugars too. it is hard at first, but once you figure out how to shop again and where to shop and what products to look for it becomes old hat, like shopping is for you now.

i've been using flax seed oil for like a year. i dont know if it is helping my crohn's or not, but it is another way to get the omega 3 fatty acid, albeit in ala form. it does provide a nutty flavor to things and i like that now since going off grains for 4 months got rid of my sweet tooth. as for it being gluten free i would think so. buy the liquid in small quantities since it can go rancid quickly once you open it.

best of luck!
Posted 10/18/2007 3:55 AM (GMT 0)
I tired Pentasa and Entocort 9mg once a day mixed, it worked for me but worn off after a yr and a bit.
Heard gluten free diet helps, breads and stuff can make things worse for some, try it and see, it never hurts to try.

Everyone is diff, I hope it works for ya :)

Posted 10/18/2007 4:41 AM (GMT 0)

The Specific Carbohydrate Diet, developed for Crohn's and Ulcerative Colitis, is based on the original Celiac diet, which was grain-free (more stringent than gluten-free). More info on SCD can be found at:

www.breakingtheviciouscycle.info

Posted 10/18/2007 3:17 PM (GMT 0)
Flax oil is ok, but not the flax seeds themselves--since seeds can tear up your intestines and encourage inflamation. I did four months on the glutenfree diet, because my (then) GI doctor decided I had celiac disease in addition to Crohn's. The glutenfree diet didn't help my Crohn's symptoms at all--and actually worsened them considerably, since the doctor said I could eat anything I wanted that didn't have gluten. Which meant that I added things like raisins and coconut (both not recommended for Crohnnies), since my diet (with both Crohn's and celiac restrictions) was so limited. I developed a footlong intestinal stricture--which actually disappeared once I was off the celiac diet, on low-fiber/low-residue instead, and on 6MP. My advice: get a second opinion.
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