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Starting flagyl and probiotic-questions?

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Crohn's Disease
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Posted 11/8/2007 11:57 AM (GMT 0)
Hi,

So 4 months on 6mp (now on 100mg) and no help really.  I have done 2 remicade treatments during that time also.  Just did a few weeks of cortifoam.  No real relief.  Im so inflamed that even air is trapped.  I cant hanlde the pressure.  Anyway doc now wants to start flagyl and a probiotic.  Please tell me what to expect and any suggestions you have to make it most tolerable.  I am only gonna give the 6mp 2 more months to start working.  Then, if no help, im going off it!  I am so exhausted and fatigued ALL the time and i think the 6mp really contributes to that.  Thank you guys.

Posted 11/8/2007 1:30 PM (GMT 0)
Hi Jusdebbie,
Well the Remicade with hopefully start really working for you after the 3-4 infusion. I also am
on Remicade and Imuran these 2 drugs works good for me. I have not be on Flagyl in a long time
and never probiotic. But I do hope these drugs help you feel better.
teddybear
Posted 11/8/2007 2:07 PM (GMT 0)
Just watch the Flagyl. It gave me numbness in my toes which has only gone away about 90% since I stopped it 4 months ago. I also developed a yeast infection on my toungue. I really felt better with it but unfortunately had to stop.
Posted 11/8/2007 2:18 PM (GMT 0)
Well, I can only speak to the flagyl. Pay attention to how you feel on it. Some people (NOT EVERYONE) develop tingling in extremities taht can become permanent if not caught early. I had tingling in my hands and around my mouth. Also, DO NOT DRINK alcohol when taking it. I have a long story about how one beer battered french fry sent me to the emergency room. Basically, falgyl is an alcohol anti-abuse drug....it makes you extremely nauseous with any alcohol. I also had a hard time concentrating while taking it. We tried a lower dose, but I still had issues of tingling.

That being said...while I was on it, it did wonders for my fistula. My digestive system was clearing up and everything was great. If I did not have the tingling, I would have stayed on it as long as I could. I wish I could find something like it. You may not have a problem when taking it and I hope that it works as well for you as it was for me. Follow directions from the doc and best of luck!!
Posted 11/8/2007 2:28 PM (GMT 0)
Flagyl really helps me when I get to go on it. I was on it for about a year and a half once, and then I started getting the tingles (neuropathies) so had to quit. I still take it short term once in a while, and it does really help. I do understand it doesn't help everyone, but keep your hopes up, it may be what you need to get you over this hump.
Posted 11/8/2007 2:44 PM (GMT 0)
I also have only taken flagyl. I didn't get the numbness, but I had the most awful metallic taste from it. I couldn't eat for the 2 weeks I was on it. It was miserable, but it did wonders for the flare. Take care, hope you find relief soon.
Posted 11/8/2007 6:00 PM (GMT 0)
I was supposed to be on Flagyl for 3 weeks to help with possible infections in my bowel; I could only make it 3 weeks. The only side effects I had were extreme and constant D. Other than tiredness-which who knows if that was from Flagyl--i didn't have any probs.
Posted 11/8/2007 6:15 PM (GMT 0)

Here's a link, when it loads in, scroll to the top of the page to read the article about probiotics from the beginning...

http://www.cbc.ca/health/story/2006/10/12/probiotics.html#skip300x250

I've taken flagyl many times and never noticed any improvements from it, but everyone is different.

Always take your probiotics at least 2 hours AFTER you're done taking any antibiotic for the day.

:)

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