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how/when were your diagnosed?

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Posted 1/26/2009 3:40 AM (GMT 0)

Did your doctors think it might have been something else at first? When I had an x-ray done a month prior to being admitted to the hospital they thought tuberculosis was a possibility! how would i have gotten that, i wonder. it was kind of freaky, when i was in the hospital, not knowing what was wrong with me, it really seemed like they thought it was tb. they had me and everyone around me in masks, and they had men in these big suits come super-clean the room i was in! i know it was precautionary because that stuff spreads like wildfire.. but they also said it could be lymphoma or a cancer of some sort. well, i'd take cf over cancer. so what are your stories about diagnosis?... if you would like to share

Posted 1/26/2009 5:02 AM (GMT 0)
hello! I was diagnosed when I was 16 - at the end of my junior year of high school. growing up, I had "asthma and allergies". I began to notice that, of all the people I knew to have asthma, I was the only one coughing all the time. Not only that, but I had such a thick, wet cough in comparison to others with asthma. It's a funny thing that really got me wondering, in addition to all this... I had a biology teacher who one day randomly started talking about CF to the class, and I was struck with the realization that I fit her description too closely for comfort. I brought this up with my allergist, and he referred me to a pediatrician friend of his. This man checked me out and, suspecting CF, he sent me off for a sweat test. I got the test done, and that was it - I was told I had CF. I don't remember clearly what happened... I had been scheduled for a sinus surgery before I had any suspicions of having CF. I think I was tested the day I went in for that surgery. Anyway, I've blocked out a lot; it wasn't a pleasant experience - the surgery mainly being the unpleasant part. After the initial diagnosis I was in denial for a long while... But, thank God, I've turned around and started working toward a positive, healthy life! I'm still learning to accept the disease; still trying to find balance.

Well, that's my story. I'm glad you asked; I never get the opportunity to share my story with anyone.
Best of luck to you. Feel free to email me any time!
-Deirdre
Posted 2/19/2009 4:28 AM (GMT 0)
hi there my name is scott 19 from kent in uk all the doctors said i had asthma all the way till 14 when 1 day i broke 3 fingers and went to a hospital and the nurse said i might wanna see a specialiest doctor and from birth i had it since thn i have smiled my way throw it and lived my life but hards things having relastionships and when u tell thm u have CF they run and thats wat hurts me the most but i get on with life
Posted 2/19/2009 10:58 PM (GMT 0)
Im now 18 and i was diagnosed when i was 5 1/2 months through a sweat test. and yeh i was the same my mum kept taking me to the GP saying she's unwell and they kept sayin its just a cold and a cough its normal but my mum knew it wasnt until one specific doctor recognised the signs and took it a step further.
Posted 3/4/2009 5:24 AM (GMT 0)
Hi!

My name is Melissa, I am now 23 years old and was diagnosed when I was six months old. According to my mom, I turned blue (probably due to a plug) and was rushed to the hospital, where I stayed for a few months until they diagnosed me. I have been very fortunate though and only have it mildly, I have never been hospitalized since and I don't take enzymes. For the first 20 years I did Ventolin twice a day and physio at night. Those have both been stopped as well, I only use the PEP when I'm congested. Now, I visit my respirologist every six months to do x-ray, PF, blood work, and that awesome GTT to make sure everything is okay.

I've been reading some of your stories and they are awe-inspiring and very courageous!!

Hope everyone is well :)
Posted 12/16/2009 11:25 PM (GMT 0)
I was 50 years old when i was dignosed with mild cf im now 53 and there is nothing mild about cf but i know that im blessed to know what i have i no longer need to beg for antibitics which i had to before knowing
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