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Posted 2/19/2009 4:58 AM (GMT 0)
Hi there im scott 19 from kent in the uk looking to make friends u never know maybe more

iv had cf since i was born and told bye a doctor when i was 14

i play alot off golf and like going out with friends meeting new people

i have 2 bros both married with kids and i live with my mum and dad

im a bit off a ladys man but when it comes to telling thm i have CF they seem to run cry

it would be nice to meet someone that loves me for me as i am a loving person

im on including creon 40000 im on about 25-50 tablets a day and on DNAS and tobi

i havent been in hospital for 3 years know and havent preduced any sputum for 2 years

i attend kings collage hospital every 3 months for a day clinic and id like to keep it at that lol

i have the liver disease aswell i dont drink or smoke but that dose not stop me going out having fun with friends

im 5ft11 short spikey black hair muscular build brown eyes

if u would like to chat or want to know more about cf or me id be glad to help thanks scool

Posted 2/19/2009 9:41 AM (GMT 0)
Hey there Scott,

Welcome to the forums.

I'm Gemma, 22 with CF and a few other undiagnosable problems.

I'm not going to lecture you-I hate being lectured about this, but it is something you should always be aware of.
Cross-infection across CF patients is a risky business. You might have something they don't have, and if you pass it on to them, they might not react as well to it as you have, and vice versa. CF patients carry very CF specific infections, that are mutated to grow in CF lungs. You may both have psuedomonas, but there are thousands of different strains and mutations of the bug, and different strains can react differently, and you can carry more than one at once.

I understand the urge though to be able to speak to someone who understands and knows what you are going through. I understand that very well. I just wanted to make sure you are aware there are risks involved in meeting others with CF. I get told these so often-because I have a brother with CF-god knows how they expect me to not talk to him, but I think it'll be turning into just phone convos, if either of us get a big nasty bug like cepacia. How sad it is to have to think like this.

I'm on Creon 10,000. Creon 25k gives me belly ache really bad, daren't even try 40k! I also have liver disease and am on Tobi nebs.

You're health sounds like it's doing good, I'm happy the meds are working so good for you. Hope it does stay that way.

My little sister plays golf. She's 13, without CF. Lol, I could never get into it, plus it means having upper arm strength and I have none!

Stay well, and keep us posted.
Gem
Posted 2/19/2009 4:32 PM (GMT 0)
yer i know about the Cross-infection across CF patients its is a bummer like i get told about it all the time too just another thing in the list u cant do lol
i can be with my bros that dont not have CF but there great with me and i thank thm for that and thanks for the reply :)
Posted 2/19/2009 10:53 PM (GMT 0)
Hey Scott, my name's Deirdre. I'm not looking for any kind of romantic relationship, but I'd love to chat with another CFer! Maybe we can email each other. You should be able to find my email on my ... page? um... i think it's under my name when I post. Anyway, if you like, feel free to email me; I don't have enough correspondence with CFers. :-) kay, see ya!
-Deirdre
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