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My boyfriend has CF...

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Cystic Fibrosis
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Posted 4/1/2016 6:58 PM (GMT 0)
I love my boyfriend a lot, and I want to spend the rest of my life with him, but he's been "forgetting" to do his treatments and taking his enzymes. He's had it since he was born so I know that it can be draining doing everything he needs to everyday. He doesn't know the life expectancy because he doesn't want to know; but when he doesn't do what he needs to do I'm afraid he is going to go from the really healthy CF patient he is now, to needing a lung transplant. I hate getting on to him about not taking his medication and not doing his treatments because that's not my job as his girlfriend. If anyone has any advice on how to deal with the anxiety of worrying about him all the time, it would be greatly appreciated.
Posted 4/6/2016 1:41 AM (GMT 0)
Hi! I am new to this forum but not new to CF. I am a parent of a adult son. I would say if maybe you could help your boyfriend with things like boiling his nebs or maybe just encouraging him to do his treatments by sitting with him while he does them if you can and he wants company. My son does not always do his treatments the way he is supposed to either. I do not have any advice on how to help you with the worrying because I do the same thing. I think that comes with this disease. I think you must be someone special to care for him so much. Keep up the good work!
Posted 5/1/2016 3:19 AM (GMT 0)
First: Just love him
Then: encourage him but do not nag. He needs you and your care. His CF no doubt gets him down and wears on him.
Learn all you can about CF so you can walk with him through thick & thin.
If you care considering children (and why not?) do get yourself tested - you may be a carrier and knowing that will help.
Posted 12/30/2016 6:40 AM (GMT 0)
I too have someone I am very close to that has cf. I think you should be honest with him about how you are feeling. You letting him know might give him the drive to do better.
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