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Experiment with Antibiotics?

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Cystic Fibrosis
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Posted 3/18/2006 3:37 AM (GMT 0)
Brand new here. Just registered tonight. My daughter was diagnosed with CF in August at four years old. Quite a learning curve for us. We have a question tonight: she's been coughing for a month and her pediatrician (not a CF specialist, but knows our daughter has CF) suggests experimenting with antibiotics until results get back from the lab on swabs she took just today for psuedomonas. We've been over a week on sulfatrim and no improvement and today received a second prescription for cepil. She also gave us a prescription for cipro and said we can get that one filled if we want to. Is this normal? I thought experimenting with drugs was not a good idea with CF patients because you want to do whatever you can to prevent a CF patient from building up unnecessary immunities to drugs by experimenting like this.
Posted 3/18/2006 8:15 AM (GMT 0)
I am the mother of a 2 year old daughter with C.F We were diagnosed ar 11 months.  This letter is in respose to the mother of the 4 year old girl taking lots of antibiotics.  My advice is to talk to any C.F. center and doctors who are trained in C.F.  We have been given many antibiotics from general practitioners and after speaking to our C.F. clinic found we did not need them.  Your daughter needs to get a throat swab done that is properly tested for the full spetrum of C.F. bacteria and fungus.  Some hospitals in smaller towns(ours) does NOT test for the full spectrum and never notified us.  I had to find out myself.  We get our throat swabs done here and sent to our clinic.  I think sometimes all doctors know to do is give antibiots.  If her cough is caused by a virus or a fungus then why antibiotcs? We once treated our little girl with a harsh antifungal that made her sick for 2 weeks for we found out no reason.  Please ask your doctors all the questions you need to and always double check with your C.F. clinic. Wishing you all the best of luck.  Stength. 
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