What do u think?

      Hey every one!..I am a little nervous here...my son has just turned 3. He is going to have a sweat test late march for CF.  We gave our doctor a sample of his feces and they came back with a fair amount of mucus...thus the test was ordered.  My wife does carries the recessive gene...however, I was tested and came back negative.  My understanding is that both of us have to be carriers of the gene for our son to have it....yet my doctor is telling me...that may not be the case.  I am concerned and confused and seek the right info.  Our son was 3-weeks early when he was born and we had to use nebulizers with him for about 10 months. However, his condition disappeared and has never reappered since then...he is now 3.  When he was born he did have a blockage of the uratual tube.  Just before surgery...the blockage cleared up on it's own...fixed itself.  We never had to do the surgrey.  However, now he has loose or watery stools twice a day for the last 3 or 4 months.  He can't drink any juice, strawberry milk, anything with chol or he has diahreea.  We are starting to worry if he is getting any nutrients....day will go by with out him eating much...despite our best efforts.. Recently, his eating has really picked up...but he has the horrible smelling stools that are reddish, brown in color...but are very wet.  Funny thing is...he is never really sick....since the original beathing issues.  I am reading all this stuff about CF...some of it seems to describe a few sym....mainly the stools...but that is it.  I want to know if a person who has CF mild or severe...has constant infections, beathing issues, coughing...or is it just a once-in-a-while thing...Is it possible to have only an issue with the GI tract...or does it always deal with the lungs?  Could it be CF..or is it something else.  I checked out the salty thing...he doesn't appear to taste very salty.  I am worried.  A dark cloud is hanging over our heads...and the waiting is killing us.

Hi, I know exactly what you're going through, the waiting is killing us too. My daughter is 6 and she's showing alot of the symptoms for cf, her sweat test is on feb 9th and I'm terrified. She has a huge appetite and shes not growing, shes only 36lbs. She has the oil in her stool and the blown out belly, her pancreas stimulation test also came back abnormal. I cant say she really has any respiratory symptoms, commom colds every now and then but nothing serious. 

I hope you can get the sweat test done earlier and I'll pray for your little one as well as mine. Stay strong and keep your faith.

Liz

sweat test?? They did that when I was a baby... now they have blood tests that are conclusive. Also, it isnt possible for your child to have the disease if both you and your wife dont carry the gene... a person with CF receives a gene from both parents. In order to have CF you have to have two CF genes. If your wife carries it there is a 50% chance that she will pass it on... if you dont carry it, you cannot pass it on... even if your wife HAS CF and passes on the gene and you do NOT carry it, the child cannot have CF. Does that make sense? I think your doctor, perhaps, is misinformed. I have had CF for 27 years and its been my experience that the only doctors who have a clue about CF are the specialists, other doctors are clueless. If you really dont carry the gene then your child cannot have CF, rest assured. Well, Im no doctor but those are the facts.