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Cystic Fibrosis
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Posted 2/19/2010 6:08 PM (GMT 0)
Hi all. it has been a very long time since I have been on. I am sorry for that . I have been having some major things going on. I am wondering if there are any families here from montgomery county pa . We have started our own Great Strides walk at Green Lane Park and at this point we are the only team. This means everything to my 15 year old daughter all she ever wanted was to run her very own walk. It means everything to her father and I also. Please let me know if you would like to join the walk. Erins plan is to have a family fun day not just a walk. Please contact me for more info.
Thank you
Jaime
mother of 2 Erin 15 w/ cf Barrett Jr w/ocf
Posted 2/20/2010 6:08 PM (GMT 0)
Hey Cody99,
Yes she does, we were told 2 weeks before her 9th birthday. Sick all the time and no one would listen. Finally we got the answer. Her friends are wonderful supporting her. All we ever wanted to do was our own walk. Got the ok now just need teams lol. Erin wants it to be a wonderful fun family day. Not just come walk and leave. She wants people to know who she is, what CF is and show the world who is affected by the disease. She is a very very strong young women and has more passion and courage then anyone I have ever met in my life. She is my strength . Thank you for the support.
Jaime
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