Hi, I have traveled quite a bit, and met many many Cf doctors, research scientists, and Dr. Beall who is the pres. and ceo of cff.org,
everyone seems to believe that we will see a cure for cf in our lifetime.
Right now in the UK - they have 200 people undergoing Gene Therapy.
Gene Therapy is an inhaled medicine, that will allow chromosome 7 to work properly.........
This is it! If all goes well, maybe the U.S.A is next.
I will keep everyone in the know as I learn more from people off the record. I will be on the talk show circuit in the Spring.
Leah Orr
My youngest daughter who is threee has CF.... It is important to me too.
Post Edited By Moderator (Admin) : 12/27/2006 4:09:56 PM (GMT-7)