Don't know how much more I can take

I know how bad this sounds because I'm not the one sick and I know she feels worse than I. My wife went from perfectly healthy to disabled almost overnight. She has lupus and is on many drugs. It's only been four months but she just isn't getting better despite high doses of prednisone, methotrexate, plaquinol, and several other drugs. All day everyday all she does is complain of various problems. I feel horrible but i've got to the point where it goes in one ear and out the other. Obviously she can't work and the four months have ruined us financially as we were a duel income family split 50-50 and needed every penny. We filed bankruptcy and will also surrender the house. We have 3 kids 8,9, and 11. I have no idea what will happen to us. I'm really hating that I've lost literally everything but my kids. I can't imagine my marriage being like this forever. Only thing keeping me going are the kids otherwise I think I'd just like to lie down and never wake up.

I agree with getting by/Karen, file for disability, check into womens infant children program for help with food such as milk, cheese
and bread..ask for help from your local church, they might be able to get you on meals on wheels program look
into that...if you get denied by disability the first time then you get an attorney to push it thru for you
they usually will get money if you win, but ask and don't go for the tv ad lawyer's...
well wishes, and seek out counceling for yourself and your wife and do a google search on lupus to see, if they
have a local support group in your area...
keep us posted on how your doing...

Thanks for the responses. She did file for disability. Funny thing is, if she actually got it, it would actually hurt us financially because we'd then have too much money! The bankruptcy would change from ch 7 to ch 13 but i wont even go into all that. She is almost certainly going to be denied this first time but the appeal (about two years from now) she would have a good chance says our lawyer. The house is for sure gone. Will be three years to be elgible for another loan. I've already decided to raid my 401k to get enough to buy a house on a land contract. I just can't move my kids into a rental. Only rentals I can find are in bad areas of town. The lupus people really only sympathize with the lupus person I think. If my anxiety doesn't go away I think I'm going to have to go on some meds.

You can still try for the meals on wheels, from a church...ask at your local church...
Posts the question about disability in the Chronic Pain forum, someone there can help you with
more info, and can give you advise on to how to succeed in getting it...from what I know
there is an ssi disability and ssd...go and ask it in the cp forum....
Maybe try to find a support for care givers website...
well wishes to you

Thanks Chartreux. I think I might go check that book out. I just got home from work after a 12 hour day and she has stayed in bed all day because she feels so bad. My poor kids pretty much fend for themselves when I'm gone. I made dinner and now surfing the web a bit before I get the energy to clean up the kitchen. I'm so tired... physically and mentally. I can't believe just 4 months ago I was so happy and now I so wish I was a single guy only responsible for myself. I hate life but I think the worst hasn't even come yet. I just feel like laying down and crying. I don't want to be a caregiver the rest of my life but I think that is exactly what I've become. Caregiver, single dad, and full time worker.

Hi Dodd, Chart from the chronic pain forum asked me to post to you about the Social Security Disability on your wife. I am a little confused about your comment that she has got disability approved? Are you saying she filed and has already been told she was approved and will receive SSD every month? Or, did she file for Supplemental Security Income and is she receiving that? Under SSD you have to pay in so many quarters to be eligible for SSD, it comes out to like working 10 years straight. SSI on the other hand is for people that do not meet the earnings requirements or have never worked. It is much more stricter than SSD because they do count the husbands income and most people do not get SSI if the husband works and makes a decent wage.

Does she have any atty handling the SSD claim? If not, I would look for one locally that handles nothing but SSD claims. Stay away from the attys that do a little of this and a little of that, they are not going to be up to par on anything special at all. I do not recommend what we call the tv guide attys either, the ones on tv that do nothing but toot their own horn on how good they are, they are after quantity not quality files and its nothing but a numbers game to them, they have so many clients that they have no clue who their client is. I know this from working in the legal field as a paralegal for over 20 yrs.

I am so sorry your wife is having so many problems. Have you all thought perhaps maybe a second opinion may be something to consider since she is not getting any better? I know with Lupus its a matter of getting the medications adjusted to meet the individual. I don't know how long she has been on her medications, but if she is not getting better something needs to be done. Is her drs aware that all she is doing is laying bed, I don't think they would want a patient to become bedridden. if they don't know then you need to let them know what is going on. I am assuming that her care is being paid for by your health insurance is that right?

I have crohns disease and did Remicade infusions and one of the side effects of the Remicade is it can induce Lupus and this is what happened to me. I am now on Humira shots for crohns but have to stay on Placquenel because Humira does the same, it can induce Lupus.

I do think you should get yourself to the dr and explain what all is going on in your life and how it is affecting you. It is not affecting just you, it is also affecting your children. You need to be as healthy as possible to keep your family together. I was in your shoes a few years back when I became disabled and totally understand what you are saying and how you feel. I ended up not only having to be put on an antidepressant but I had to get some professional help in the form of counseling. I found a wonderful psychologist that really helped me learn how to cope and deal with my life that had been snatched away and turned upside down literally over night. You really do mourn your losses, your wife will do the same thing. You both probably could use some help to learn how to cope and deal with things. My heart goes out to both of you. Talk to your children as much as you can so they don't think mom is sick because of something they did. Children for whatever reason always think its something they have done when something drastic happens in the family.

If you get a chance and I do know how busy you are with all of this on your shoulders, but come over to chronic pain forum and look up the CP101 and read some of the info there on SSD. Also, SSD has a very good informative website that is user friendly to check things out there. Please keep us posted on how things are coming along.

Thanks for all the advice.  I will have to go check out that disabillity info on the CP forum.  She has applied but not yet heard back on sher disability claim.  We did see a lawyer.  He said it doesn't matter how much I make (not all that much though) if she has worked enough herself (which she has).  She been to many doctors about this "Lupus" if that is what she has.  They all seemed pretty stumped but it seems clear as day to me.  Since they are treating as if she did have it I guess the label doesn't really matter.  Now I'm dealing with an issue with my 11 year old daughter and her so called "friends".  Aarghhh....