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Do you have a medical condition you feel alone with?

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Depression
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Posted 7/6/2013 12:20 PM (GMT 0)
Other than the obvious one of depression, I mean.

For me it's Crohn's and having a stoma (bag). I only had my operation a few months ago and I find accepting having a stoma for life hard. I just don't like it. I'm very clear in my mind that I would rather have never needed to have a stoma at all. I can't take any positives from the op, folks. I'm just worn and beat down after years of illness.

Anyway, I deal with having a stoma because what other choice do I have? Can't exactly leave it to flow freely in public, so I change the bags, try to protect the skin as best I can, etc. But I don't love it.

I'm finally getting to my question... Do you feel stigmatised for not having a 100% positive attitude towards your particular medical condition too? And if so, is that in real life or online?

Take care, and hope you are all doing well today <_<.
Posted 7/6/2013 12:23 PM (GMT 0)
I felt very alone with the fibromyalgia until I joined the forum. Now I know I am not alone anymore.

I hope you feel better soon hon.

It is difficult what you are going through. I couldn't imagine actually, just know we are here to support you through this.

Hugs, Karen...
Posted 7/6/2013 8:30 PM (GMT 0)
I still owe you an email, Karen :-/

I went out today and feel a lot better now. It's properly nice weather now, warm and sunny, without being too unpleasantly hot or humid. As a bonus, hot weather makes my skin better and it almost didn't bother me at all today. Also, I didn't completely fall apart with tiredness and held up quite well.

I don't think I have fibromyalgia (unless it causes itchy skin), but it doesn't sound very nice. Anything which is chronic and debilitating is a drag, tbh *hugs* :-/

PS: I bought 'The Mindful Way Through Depression' for £2.99 from a second-hand bookstore :p
Posted 7/6/2013 8:50 PM (GMT 0)
That sounds like it would be a good book. Mindfulness is so important. Makes things go a lot easier. No worries, no dwelling on the past. Let us know how the book is.

Hugs, Karen

Yes, you owe me one. lol... ;)
Posted 7/6/2013 9:52 PM (GMT 0)
The Walking Dead is on in 10 minutes - can't miss zombies, rrrrrrruuuurrgh :p

Then after that it's midnight and I should be winding down for bedtime... :-/

Still, I'll definitely be in tomorrow. Even if it's a beautiful day again, I gotta stay in to watch the Djokovich-Murray final. I suspect I'll also be a bit done in from today, another reason for going no further than the garden. So if I don't email tonight, I definitely will tomorrow!

Plenty of time to read my new mindfulness book tomorrow as well... >.>

I'll say goodnight 'cos I probably won't be back online tonight tbh. Goodnight, Karen *hugs* :p
Posted 7/6/2013 9:56 PM (GMT 0)
Good night hon!!!

Sweet dreams...

Hugs, Karen...
Posted 7/7/2013 1:09 AM (GMT 0)
NCOT,

I do not think we are to find things in our daily struggles to "love". It is in the challenges that we find our strengths, and in those strengths we can see the beauty in life if we allow ourselves too.

There is a reason for pain, suffering and struggle in this life. We may not like it, but there it is, in all it's glory.

I hope you find your strength in your struggles.

Peace
Trina
Posted 7/8/2013 3:54 AM (GMT 0)
I know how you feeling. I was born with a rare genetic syndrome. It's so rare that a lot of drs refused to see me at all. Some of the ones who did see me wanted to use me as a guinea pig.
This syndrome caused me to develop osteoarthritis at age 12. I was in band but was forced to quit my sophomore year because the marching was too hard on my knees. My band director told me that I made up juvenile onset arthritis. I actually lost some friends over that.
I'm facing 3 surgeries before this year is done. It's stressful. Not only that but my health makes me feel so much older than my 29 years. I've never been able to do exactly what and I want and to the extent I want. When I was 15 my grandmother would make my cousins and sister not play physical games with me, telling them that could hurt me.
When I feel isolated because of my limitations I remind myself that I'm lucky. Despite my health stuff I have lots going for me. I'm not in immediate danger of dying. I have been able to have kids, raise my kids, and I'm stuck in a wheelchair. Growing up, drs were constantly predicting my death. "I'd never make it to 10, 14, 20, etc". I'm almost 30 and still haven't had any life threatening problems. That's where my screen name comes from. My being still on earth is a victory of the angels.
Posted 7/9/2013 11:15 PM (GMT 0)
To NCOT ...

  "The Walking Dead" ..... ??? Hey, it's re-run time, and for quite a while now. Just some trivia ........ (and you may be aware of this but) ....... it's amazing how many of the characters are British (and in one case, I think Australian). Two of the four major characters from season three are British - heard their accents on talk shows - and one of the daughters is either British or Australian. As violent as this series can be ... it is magnetic in its character interactions. And .... in the last episode of season three, the kid (10+ year old son) is about to become leader - whoa!!!

Diversions are good!!! 

  about your subject though .... I would guess that most of us have a plateful to handle - and sometimes it feeds the depression. I am sorry to hear about your Crohns. My prostate cancer when it came back for the second time started to affect my kidneys ... put me in the hospital three times in 2011/2012.

  But everything with my kidneys has been manageable for just over a year now - and that's good. With a nefrostomy tube for my right kidney and an internal stent for my left kidney, I have managed to NOT allow those two things to hold me in depression. There's even a positive in the fact that I usually do sleep for at least 6-hours overnight - before having to get up (to pee).

  Then, of course, there's the cancer itself - but that's another story - a long-term fight. It makes my COPD seems like an absolute "piece of cake"!

P.S. ...... did you catch the first season of "The Bates Motel" - especially after the second episode? Hmmm!!!!!       

Posted 7/10/2013 12:57 AM (GMT 0)
I watched Bates Motel. I enjoyed it. I wonder when it will start again?

Hugs...
Posted 7/10/2013 11:33 PM (GMT 0)
To getting by:

  I just checked the A&E website ... and everything is hush-hush for next seasons "The Bates Motel". I expect they will have a second season. The first two episodes of Season One were OK - but as soon as Dylan came into the picture - and Emma got a little more involved ... character development got interesting. And the last few episodes were downright good.

  The actor who plays Norman is pretty good - very convincing of a pubescent Norman - from "Psyco"! And Norma ... is totally convincing for the reason Norman is Norman! And finally, Dylan has become a very likeable character - and even a brother and a son in the last two episodes.

  Just a little diversion or escape above - also needed on a daily basis!

 

Posted 7/11/2013 12:08 AM (GMT 0)
I feel alone and very scared. My ekg show brugada syndrome pattern but I've had 2 tests some to confirm I don't have it and just yesterday I was perscribed a drug "lexapro" that's a No No drug for brugada patients. But My depression is just out of control so My first dose is tonight.

I know people with brugada syndrome its just you never hear about the people like me who have been told they don't have it. How their lives have moved on And such........but yeah. Depression and anxiety suck........bad
Posted 7/11/2013 12:45 AM (GMT 0)
I wish you luck with the Lexapro. I am not familiar with brugada syndrome, but I will look it up. I hope that you feel better soon.

Hugs, Karen...
Posted 7/11/2013 3:27 PM (GMT 0)
I have just read through all your posts and I feel very petty. :( I am not familiar with most of the illnesses that you have but I hope that you recover soon or that they continue to be well managed.

I have epilepsy as well as asthma and eczema. Most times I am ok. But when I have attacks it is like everything comes up at once and I fall into self pity mode :) Or when things don't go my way and I have a panic attack and ***** my meds. Silly really. I am however glad to be alive and to have my issues relatively well managed.


Welcome to the forum, had to edit your post. We can not discuss self harm on the forum. When you have time, please review the forum rules. Thank you. Stay safe.

Peace

Post Edited By Moderator (BnotAfraid) : 7/11/2013 10:15:37 AM (GMT-6)

Posted 7/11/2013 4:40 PM (GMT 0)
Hi Dhiambie,

Welcome to the depression forum. With me being older, I can tell you now, there are many pot holes in life especially with depression. Learn to cope with the panic attacks through breathing, it really does work and gives you a feeling of control. In through the nose and out through the mouth. Called smelling the roses and blowing out the candles. It slows down your breathing and heart rate. It is a very good tool that is yours to use during panic attacks. Learn that often in life, things don't go our way. Learn to go with the flow. It makes living much easier. And self pity is a waste of time and energy. You will get use to this.

Having epilepsy is not fun. But trying to relax can help. Don't drink. That makes it worse, along with depression. So if you already don't you are ahead of the game.

I hope that you feel better soon. Keep posting...

Hugs, Karen...
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