Posted 9/13/2017 3:43 PM (GMT 0)
getting by,
I apologize, when I say BP I mean the Diastolic BP is high. Usually ranges mid 80s to 90s. The other number is always normal. I am in pain a good 12 hours maybe out of the day and the pain always fluctuates between my head (headaches, sinus pains, jaw pains etc) to joint/muscle, then to chest (feeling like I can't breathe sometimes... not sure if this is asthma related but I only developed it last year so... that's when my health started to decline). On the bright side, I can walk. I can talk relatively well, my speech is change now because of jaw/tongue/mouth pains/tension. My eyesight is okay besides lights staining them easy, floaters, and general pressure on them haha. In general, I am tired but I am not sure if that means I am just depressed. I seem to manage though pretty well. It is just the muscle twitches/jerks and sensitivity to lights/sounds that really bother me. Half the time, I truly feel like I am going insane. I don't know how I am even managing to drive to work everyday and so on so forth.
Sorry for the spill there, there is literally just so much going on with my mind and body.
I am planning on trying to call and find a therapist today. I tried to get into someone good around where I live but they are not accepting new people. I think I really need to see someone though at this point.
I have been making diet changes but, since I've lost so much weight, I am afraid to lose much more. I was at 150 (which isn't the best) now I'm down to 128-130 on an empty stomach in a matter of a two months. Not trying! I am currently not on any medicines either, just take tyelnol or motrin when I am really bad. I try not to take too much though for fear of my liver and stomach in general. I see my neuro in October. I was tested for MS and all the other things, nothing came from it.
You are right, I am not giving up on the future right. Taking it day by day. I have hope that things will turn around. I guess that's how I've always been.
Kelly,
Hi, thank you for your kind words. It is extremely difficult, especially because I was a pretty active go getter before this happened. I was planning on going to college and working two jobs ( I worked 7 days a week!) and all was fine. I couldn't manage college right now, my brain fog gets so bad I can't read sometimes. All my energy goes to work and whatever is left to try to be social. I get to moments where I truly feel like I am dying or I am not going to make it but then I am okay the next day for the most part. During those moments, I get into dark thinking. I wrote above about seeing a therapist, I am really going to call around today to see what I can do. I think a big issue is I cannot express myself right, when I try to talk to friend or family I don't want to seem like a victim but I am truly suffering. We all can at times and it sucks!!!! I will make sure to try and change my thought process to something a little more positive.
Thank you both so much for your advice, I hope you both have a good day and good ones to follow.
hugs,
- Faye