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Newe....normally in ostomy site...could use some help

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Posted 11/6/2009 4:52 AM (GMT 0)
So I just had my reversal about 17 days ago and besides the small need for laxatives and no appetite/drinking due to depression and GI flu oon top of it all seems well. Do you evem seem so scared for the future that you just cannot quite let go. Its been 17 says and my connection failed at 3-6 months last time before my ileo. I feel I have every right to be scared still and others around me just want me to jump for joy for this iracle, but inside i still feel so scared. I was in the ER with the GI flu and dehydration the last two nights....i saw my pcp today and he put me on clonipine, cymbalta, and xanax to get me though this. He said its temporary. I spoke and cried with him for an hour. He knows me better than anyone and my friends want me to see a shrink. I want to try and see if the meds works and get throught his on my own. Have any of you ever experienced this after your what should be final surgery??? Is this normal with chronic disease to change. All my friends say they want "me " back and they are worried about me, but it takes time and just becuase i do not have a bag right now, does not mean i am ok 100% its been 17 days. Between the flu, withdrawing pain meds, and having what i would call a mere nervoud breakdown i think i just beed time. i feel awful, but my weight is stable. My doctor said just drink, the GI flu and depression give you no appetite and everyone thinks i just do not want to eat. I am trying so hard......its just so tiring.
Chronic Lifetime Constipation, Dx IBS-C for 7 yrs

Diagnosed Colonic Inertia-Oct 2007

Total Colectomy with ileorectal anastamosis- Jan 28, 2008

Ileus with suspected leak- Feb 1, 2008, ended with four abdomal abscessses and 2 drains

Diagnosed with small bowel Fistula- March 6 2008

Drains removed- End of March 2008

Continued Constipation- biofeedback for 3 mo Aug 2008, Dx Rectal Inertia (Anismus)

Admitted with Small Bowel Obstruction April 4, 2009 and emergency ileostomy 4/13

Re-admitted with abdominal abscess. Released 4/24

Cleveland Clinic twice for 3/4th referral. Anismus undetected (no medical explanation)

Retracted stoma-infection/skin breakdown.

Ileostomy Reversal- Oct 8, 2009. Ileus, Dehydration-Ongoing, but resolving 10-15

Posted 11/6/2009 5:57 AM (GMT 0)
hi xm. you have been through quite a lot, give yourself the time you need to recover and heal. the meds will help, albeit i agree that in combination with therapy and when the time is right some therapy in combo with the meds will be highly benefical. take care, you will bounce back in time. my healing compassion to you.

jamie.

Posted 11/6/2009 1:15 PM (GMT 0)
Can I just say I am amazed at your bravery,all the ops,anaesthetics must have caused havoc with your system,I would have freaked out,so I can't give any medical advise but I can send you a very, very BIG HUG.
Posted 11/6/2009 8:46 PM (GMT 0)
Thank you all so much....for your sweet replies.I saw my surgeon today and I am "ok" but down to 100 lbs and eating is a struggle with the meds and anesthesia, and surgeries. Right now we are not talking more surgery. I am trying my best to just get through each day. Going to goet out for a bit tonight and I think it will help. Love to you all.....thanks again for your responses. I had a panic attack last night and feel depressed today, but i have only been on my meds for a short time and hope with time this will get better. (((HUGS)))

Lizzie

Posted 11/6/2009 9:09 PM (GMT 0)
Xtreme,

KNow that you are in my thoughts and prayers. This must be difficult for you right now. KNow that we are all thinking of you and that we are here for you.

Best wishes,

Hugs, Karen
Posted 11/6/2009 9:16 PM (GMT 0)

Hi Lizzie, I know somewhat how you are feeling as I had colon resection surgery a little over 2 weeks ago. I know it is not as bad as what you have been through but it was still a very major surgery. Had that tube down my throat into my stomach and it seems tubes out of every where.  You seem to be doing well. I have had no appetite and it has been hard to drink as much fluid as the drs push. When you haven't eaten or had fluids for many days it becomes hard  to swallow.  That has been one of my problems. And food is just not at all appetizing. It is an effort to get any thing down. Also heavy duty antibiotics play a role in no appetite. I developed a bad infection after I came home and had to go back to the hospital, big bummer. I now have a big wound on my abdomen as they opened up my incision so I have that to deal with too. This has to be hard for you but remember each day you may feel a little bit better. Recovery can be slow. Please try not to get too discouraged. Slow progress is still progress and that is great that you are going out. I still cannot go out as I am too weak. I lost 24 lbs. which is a lot in such a short time. Try to drink as much fluid as you can and one thing that helps a lot is to eat as much protein as you can. Have chicken, turkey, beef, cheese, eggs, peanut butter. If you can't eat much try to have 6-8 small meals a day. You might try protein shakes. I am drinking a lot of tea, trying to get the water down, juice, and I also drink caffeine free coca cola because I like the taste. I also have ativan to help with the anxiety which can be a lot to deal with. I wish you the best and hope you will be feeling better soon. I would be glad to answer you any time if you post again. Take good care of yourself. I know you can do this!

Hugs,

Aurora

Posted 11/8/2009 7:39 AM (GMT 0)
hi Lizzie i would just like to say that i hope your recovery is much quicker than ur last. I to have had many op's infact my last one was in March 09 and that was surgery number 45!!! I truly feel for you and hope the pain goes away and you can start eating and drinking properly as i found that the worst. Also th naso gastric tube is horrible to. I dont think there's anything nice about any of it. IT SUCKS.......
Look after ur self and hope the road to recovery is swift.

best wishes to you,

beverley.c. :)))))))))
Posted 11/9/2009 9:57 AM (GMT 0)
hi lizzie, just popping by to say hi, and i hope you are feeling a tad better. here 4 ya. jamie.
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