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Posted 10/24/2011 11:51 PM (GMT 0)
Okay I will... with pleasure. It is good.

I hope that things work out with this new doc. Glad that you got an appointment next week.

Hugs, Karen
Posted 10/25/2011 1:17 AM (GMT 0)
Maggie,

All 3 of those meds I have mentioned are used to treat a wide range of pain. Neuropathy is just one of them. One or more are frequently prescribed for fibro pain.

My wife has fibro and she has tried all 3. For her Cymbalta and Lyrica worked the best. The only reason she switched from Cymbalta to Lyrica was at the time Lyrica was the only med FDA certified for treatment of Fibro. Since then I believe Cymbalta has also gotten that approval as well.

If you do decide to talk to your doctor about trying any of these meds make sure your doctor knows how to prescribe them. All 3 of them MUST be started at the lowest possible dose and then slowly increased if needed. I don't recall what the dose schedule for Nuerontin is but Cymbalta is 30 mg once a day and Lyrica is 75mg once a day as the starting dose and then if an increase is needed it is increased by that amount and done so roughly every month until either a theraputic dose or the max dose is reached. It is not uncommon at all for people to need at least one increase before seeing results.
Posted 10/25/2011 1:30 AM (GMT 0)
Thank you Jim for all the info...it would be nice to have relief from fibro pain. This time of year i love the weather but it's rough on the body.

I'm just looking for a "cocktail"that allows me to function and feel joy and not break the bank-oh yeah, don' forget world peace-lol.



I get my prescri[tions thru Catholic CHARITIY and they do basics, not new drugs but I can always apply to the manufacturer...if a drug works, it's worth the red tape. And thank you for the dosing warning...that will make you stop a drug that works if they titrate you too quickly.

I hope your wife's fibro is under control. Have a good night.

Maggie
Posted 10/25/2011 1:39 AM (GMT 0)
My wife takes two 75 mg capsules of Lyrica per day and she says it controls 90-95% of her pain, 95% of the time. The only time it doesn't is when she goes through a flair. She got the same relief from 60 mg of Cymbalta.
Posted 10/25/2011 4:16 AM (GMT 0)
Hi Maggie,

You were in my prayers today. I hope and pray that happier days will come your way. You are a wonderful person.

I used to have a lot of fibro. pain, but went on a sugar free low carb candida diet with some herbs for a while. That helped a lot. Then juicing: beets, carrots, spinach, parsley, celery and cucumbes. Juicing has helped me very much.

Some people have also had help taking denaturized whey protein which naturally increases glutathione - a natural detoxer and immune system booster. A guy that has another fibro. site got lots better using a supplement like that. I myself also noticed a difference, mostly less allergic reactions and more energy taking one. I use one that is pure denaturized whey protein. It's multi-level marketing, so a bit costly, but it's a good product. Not that I'm trying to sell it. Just giving general info. re. some natural things that can also help.

I know there are answers for you. And I pray you will find them. Don't ever give up. You make the world a better place. Wish I could give you a hug: "HUG."

Take good care of yourself. You are worth it.

embers
Posted 10/25/2011 11:31 AM (GMT 0)
Dear Embers-

I woke up in the middle of the night and read your post-and then went back to bed feeling better.Thnak you so much for your parayers-yours and others must be working because I get to see my pain doc nextweek instead 5 weeks from now, I got out of bed and steamed our floors in prep for waxing...house is solij bamboo floors which are beauutiful but such high maintenance, esp w/ 32 dogs, ateeneger and hubby who works outside. But it felt good to accomplish something instead of lying in bed feeling guilty about it lol

Katie's report card came and even with adhd un treated she got 2 As 1B and 1C-we are very proud of her...she seems relieved to be taking her meds, even if they take awhile (stupid antids!!) but seems unwilling to eat  healthier (and we're not talking juicing level), regular sleepschedule and a big schedule in her room with all her due dates etc. She forgets assignments. Last night she had about a week's worth of history to do. Well, we just do the best we can.

I have heard several people here, including IG talk of no sugar, no caffeine diets and other s that take it  further. Do you take any meds, Embers. You must be very trim and healthy. The abilify seems to ramp up my sweet tooth. I had lost 20 lbs but put 7 back on. nono nono nono nono

OK, gotta go wake up the sleeping beauty. talk with you later.

In my prayers

Maggie

Posted 10/25/2011 12:05 PM (GMT 0)
Good morning Maggie,

I think I beat you up this morning. Got up at 6:30. lol... Still dark out. But the birds are starting to make noises. That time of day...

I hope that you have a good day today. Hey I tried neurontin, made me studder. I don't know if you ever tried it or not. but I didn't like it. I see it was mentioned by Jim1969 in a post,. I hope that you find what works for you.

Hugs, Karen
Posted 10/25/2011 12:06 PM (GMT 0)
Duh, you posted before me, how could I beat you up??? But I didn't come to the forum right away. I just wanted to be an early riser today. lol...
Posted 10/25/2011 1:34 PM (GMT 0)
Yeah iused to turn on tv right away w/ morning coffee, but now I come here-it's much quieter-lol

They gave neurontin in hospital, felt yucky and did nothing for pain. I used to be on hydrocodone, flexerfil and 800mg moytin...seemed to work pretty well...hubby has arthritis and old neck surgery and has pain from that, so when I used to get my meds, he'd want some. This time Itold him if you are in pain,then go to doc and get your own. He says I don't need them. He thinks I'm a B for not sharing. Oh well, I guess he'll get over it...I'm not going to run out early and suffer withdrawal. His bipolar makes him self medicate any way he can. I made an appt for him to get his meds again....he says we cannot afford them...I think it's about $40/month which equals 2 happy hours I told him. I said Katie and I would really be so happy if you would take them, we know you can't see it but you are so different. Cross your fingers

Maggie
Posted 10/25/2011 1:58 PM (GMT 0)
Fingers crossed, but it makes it kind of hard to type. lol... I hope hubby listens to you and gets help. I know it would make your life much more pleasant.

Here's wishing you a good day.

Hugs, Karen
Posted 10/25/2011 5:19 PM (GMT 0)
thanks dear-

we drove to Gulfport today and picked up abilify samples, cause medicare is so slow to authorize (GRRR) and we took the beach road....it is so beautiful, every time I drive it i feel some peacr and joy (even if it is the water that destroyed us with Katrina) so hub and I had a pleasant morning, no arguing.
I think Katie is feeling some side effects but I am downplaying them or Miss Dramam Queen will want to stop. She told me she had a brain aneursym-lol-only half joking. I remember some grogginess and nausea with welbutrin but that goes away. I hope it does her good.

How is your weather? high of 80, no humidity, all the doors and windows open...we have double french doors overlooking our deck and bayou where I hang all my porch gee-gaws, chimes, bird feeders, and other little tchotchkes...it drives my husband nuts...if it were up to him our deck would have a chair and a grill on it-lol...we have alot tob e grateful for, don't we? Hope you don't have rain again-that can get intop your bones w/ fibro

Talk to you a little later

Maggie
Posted 10/25/2011 7:29 PM (GMT 0)
It is cold and wet today. I would rather have snow than this. My neck and shoulders are so tight that I am going to get the bed buddy out and wrap it around me. I took a roast out, I wish I would have taken it out last night so I could be baking it today. I could thaw in the microwave, I guess. Your place sounds beautiful. I have wind chimes but no birdfeeder. That attracks cats. I have had to deal with that before. I don't like the cats killing the birds, so I stopped. Plus it was work. I bought sunflower seeds a hundred pounds at a time. I had all kinds of animals that I fed. From turkeys to deer. Had coyotes coming in too. And once a bear. But I had to go out every morning and fill the feeders. I had a lot of them to fill. I so enjoyed the wild life back then. I even had a family of foxes for awhile. The kits were so cute. They would come out and stretch in the mornings. But they stayed away from the dogs. I had three dogs then. I only have one now. But she is a handful. She keeps wanting out, but it is raining so when I go to put her out, she doesn't want to go. I think she forgets that it is raining or something. Or she wants me to take her on the leash. But I don't want to today because it is so wet and cold.

I just took my pain medication, waiting for it to kick in. It sure is a nasty day. I will sit here and think about your place and let that take me away. lol...

Have a good day Maggie.

Hugs, Karen
Posted 10/25/2011 8:34 PM (GMT 0)
I have had to rig some cat-proofing for our feeders and squirrel proofing too. We go thru sunflower seeds and they ain't cheap-but I love the families and the fighting, hummingbirds and butterflies all over our "bottle brush"

How cool to see all those animals...I am very into wildlife (not hunting it) When we first moved here it was much more rural, dirt road, we saw wild turkey and foxes too. Not anymore. But the eagles, ospreys and hawks are back Giant woodpeckers all the regular bird life, turtles. Of course alligators are like cockroaches never die off-lol. We have a tree trunkhalf submerged and every morning the turtles sun. My husband used to catch snapping turtle in the swamps and sell the meat to the fancy restaurants in New Orleans. Dangerous guys!

Oh well ramblin, Katie home soon..I'm sorry weather is so crummy, I know how that damp cold gets in your bones...get the heating pad out and pain meds

Maggie
Posted 10/25/2011 8:38 PM (GMT 0)
Hi Maggie,

Yay or Katie on her report card! And I'm glad the meds. seem to be helping now as well. She is blessed to have a Mom looking out for her as you do.

Re. there are lots of things to replace sugar with. Not talking splenda and artificial sweeteners as those are very very very bad. But you can look into stevia. And brown rice syrup. These are both healthy sweeteners.

I don't take any meds. I went the natural route. I eliminated about 30 symptoms doing the candida diet and cleanse. That was ten years or so ago. Since that time I eat a pretty natural diet and have treats from time to time.


Gluten and dairy foods produce mucous which can contribute to different types of pain. Cutting those out might help. I don't worry about small amounts of gluten, but I have replaced wheat bread with rice bread for example as rice flour is gluten free.

So it's a lot of work, and it's a lifestyle that I had to work my way into, but it works for me. But even without doing it to the extreme, cutting out white sugar and dairy would in themselves make a difference I for a lot of people imo.

I dont' drink coffee, so wouldnt' know about that one. I do still have chocolate sometimes. But for cocoa I use 'wondercocoa' which is mostly caffeine free. Though organic cocoa would be a healthier choice even though it has caffeine in it because with decaffeinated products they use a lot of harsh chemicals in the process of decaffeination. I think they use lye actually.

That is my ramble for now. lol!

Oh, I also take a daily nap, though with this house building the last month I havn't had a lot of those. And drinking extra water. I know Karen drinks lemon water and she really likes that. I think that is a great idea.

Little things we can do add up, especially over time. It is possible to feel better! :0)

Hope you are having a good day today Maggie. You too Karen!

embers
Posted 10/25/2011 8:48 PM (GMT 0)
Hi Maggie,

My first husband use to do the snappers. He had a group of guys clean one up one day. It was wierd. There were two of them. The heads kept biting eachother and the legs would run off. Even after it was cut up. But they cleaned it and he boiled it and then deep fried it. It was really good. He was from North Carolina. Spent a lot of time in the swamps. Infact his nickname was swamprat. He taught me a lot in 23 years.

Embers,

It is so nice to see you post again. Yes, I do drink a lot of lemon water. But made a second pot of coffee today because I was cold. My bladder will be thanking me for that one tomorrow. I have to be so careful of what I drink anymore. No pop. I snuck a few drinks of John's fountain pop yesterday though. It was so sweet. I don't remember them being so sweet. But they are.

I hope that you are both having a great day!!!

Hugs, Karen
Posted 10/25/2011 8:56 PM (GMT 0)
How about agave syrup? Stevia is ok (Ihate that truvia ad) too

OMG, no dairy??? No cheese? My downfall is fresh french bread and real butter-may as well break all the rules..

Seriously, I had to cut salt out b/c of high bp, which has come down-no bacon, no processed meats, soups, ready to eat meals. I like to broil my meat and steam veggies or salad. Unfortunately, my husband is diehard meat potatoes biscuits and gravy. We love our bad food in the South. We may not live as long but we have a good time when we are here-lol

I do have to lose weight so cutting out sugar and the white stuff is a real good place to start.. I finally broke My Coke habit and love our ice cold well water!! Now if I could geet the other 2 on board. I think I heard abilify can make you gain weight??

Anyway, lil bit is home, gotta go

Have a nice eve. BTW, how is hubby doing?? I hope no news is good news

Maggie
Posted 10/25/2011 9:55 PM (GMT 0)
Hi everybody. Maggie did you say 32 dogs?
Posted 10/25/2011 11:23 PM (GMT 0)
OMG shoot me now!!!! that would be 2 dogs 1 cat, and we can barely feed and care for them. I wish I had the land, money and energy for 32 dogs, but just a typo.
embers-hubby just cooked dinner...pounded breaded fried chicken cutlets w/ white gravy and mashed potatoes-LOL-bless his heart...I had a little piece of chicken. See what I mean-families can sabotage you, can't they.

Katie went to a college fair tonite (10th grade) and I just love looking at different campuses but then I look at the tuition- fortunately she wants to go to school instate and wants to be a psychiatric nurse-gee I wonder why she'd want to do that? Everyone here is so well adjusted-LOL-6 years of very hard work...but she changes majors every six months and I told her most kids have no idea at that age what they want to be-it's ok, you're still a kid...

anyway, ramblin on again, thanks for all the company ladies and a great evening to all

Maggie
Posted 10/26/2011 2:40 AM (GMT 0)
Hi again Maggie,

For agave syrup I read something about that, that it depends on how it is processed. You can ask at your local health store if you have one. There is a certain processing needed - one is basically like corn syrup and one is really good. Just can't remember the details.

You know what I do? I cut out the 'no no' foods for awhile and then my body gets stronger so I can have them once in a while with little negative affect. It took years for me to adapt to this diet of mine, but I love it now. It sounds like you have good healthy stuff on board with your meat and veggies already!

Karen, so nice to see you here! Probably you notice how sweet the fountain pop is because you havn't had it for awhile. It's interesting how the body adapts. I remember eating some of my favorite 'treats' after being off sugar for awhile and they tasted waaay sweet and not too good after all. Though of course chocolate is in a category of its own. haha.

Hubby has been up and down, but I was praying the other day and asking God what I can do to get along with him. So I am trying to practice compassion more and it is helping. He still annoys me a lot, but I am kind of looking at it from a different perspective as much as I can.

House is comign along. Another mini crisis yesterday, but we are looking at solutions for it (sink install). Can hardly believe the ordeal of this is almost done!!!

Hi Stillme, I had to look twice on that 32 dogs typo myself. lol!

take care, embers
Posted 10/26/2011 7:57 AM (GMT 0)
Oh so ya mean, y'all actually read my poats? LOL

Maggie
Posted 10/26/2011 8:01 AM (GMT 0)
lol, we do, well i try sweetie, admittedly i am horribly behind!!!!! :-) am ever so tired jamie
Posted 10/26/2011 10:16 AM (GMT 0)
Sorry about sleep issues-seems like we can't get 2 ina row, eh? I got up at 2 am and caught up on emails, but it means this afternoon I'll feel like a zombie and get nothing done, and crabby to boot-lolMy sister is coming to visit next week and there is so much I need to do. She lives in New York where she is the Commissioner of environmental quality-I love and admire her so much...she has not seen the post-Katrina house or seen Katie in a year (who shot up 2 more inches)...she would have been a great therapist, I can talk to her and she listens very deliberately and gives good advice, very calm like my brother. I am the only whirling dervish in the family (middle child, don't ya know)

What on earth am I blathering about? Hope you sleeplike a baby jamiee talk to all later.

Maggie
Posted 10/26/2011 10:23 AM (GMT 0)
all good maggie. see ya later, am cleaning, manic. :-) jamie
Posted 10/26/2011 11:28 AM (GMT 0)
stop by my place ok? lol
Posted 10/26/2011 1:15 PM (GMT 0)
I read the posts too, like you Jamiee, I am very behind. Feeling down and blah, don't feel like doing much of anything, so I can't stay focused to read too much.

Jamiee, after you stop by Maggie's, can you come to my house too smilewinkgrin . Don't even feel up to cleaning. The house is getting to be a mess, but I can't fix it. This is a pitiful shame. Maybe I need to hire one of the cleaning services, until I get back on track.

Have a good day everybody.
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