Do any of you have severe neuropathy?

pocketfull

Regular Member

Joined : Mar 2012

Posts : 350

Posted 12/4/2012 4:05 PM (GMT 0)

I am just feeling frantic. I take 3600 mg gabapinten a day. I take hydocodone as needed. Does anyone take something new that I am not aware of? I have tried the nerve stimulator for one week, I could feel nothing in my feet. I tried lyrica too.

My electrical tests show a straight line rather than deep ups and downs as they should be. My doctor said I have very damaged nerves. I have severe pain 24/7. The gabapinten works but not nearly as well as it did when I started using it. I now have it in my hands. It is difficult to do most everything, typing included.

I look forward to hearing from someone. I hope you all are having an easy pain day....thanks for your reading.......regards.....Cathy

Lanie G

Forum Moderator

Joined : Nov 2006

Posts : 7019

Posted 12/4/2012 9:10 PM (GMT 0)

Hi Cathy. I wish someone could help you with this. Have you tried posting in the Chronic Pain forum?

pocketfull

Regular Member

Joined : Mar 2012

Posts : 350

Posted 12/4/2012 10:58 PM (GMT 0)

Hi Lanie, me too. I dont hope anyone does have severe neuropathy. I just wish i had someone who was just like me. My family is so worried about me. They feel I have no life. Its true I dont go anywhere. I do what ever it takes to stop my pain to a bearable level. My Mom, sis and husband got together and had planned to "encourage me" to go into a mental hosp. for people over 55. They think there has to be a way to learn to 'live" with the pain, and have a life. If there is a way to live with it, I want to know what it is. I dont see how anyone can learn to "not feel the pain". I just want to know if there are better medicines to take, maybe better combinations of meds. I have agreed to seek a psychiatrist weekly outpatient, maybe 2 days even. I dont trust any hospital for elderly people who you must place your self in their hands and trust them to do what is right and truly recognize when a person is in severe pain.

I am writing too much. I will post on chronic pain...hugs Cathy

Sunee

Regular Member

Joined : Dec 2012

Posts : 23

Posted 12/13/2012 4:03 AM (GMT 0)

Hi Cathy,

My father had extremely bad neuropathy in his feet and was desperate for relief. He's 85 and recently found out he's diabetic. Anyway, I spoke with him last night and he said that he had read that cinnamon helps lower blood sugar levels so he tried putting it on food but it wasn't enough so he bought the cinnamon capsules from WalMart and said that since he has started taking 2000 mgs a day that his feet have stopped hurting. He also said that it's lowered his sugar levels to 96 and it had been running in the 120's.

I can personally relate to your pain issues. I too have had chronic severe pain since 1998 and have been on a long list of pain meds and have tried the Medtronic Interstim implant (trial). I currently take methadone, flexeril, ultram, etc. I had also been on lyrica for the fibro pain but my body built up a tolerance to it.
I'm so sorry that your family doesn't understand what you are going through. That just makes you feel like you have to hide your suffering and that isn't healthy.
I picked up a magazine in my drs office yesterday that is for people who are living with pain. They have lots of listings for websites of places to get help.
Their website is: painpathways.org

I do hope you can get some relief soon. =)

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