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Mystery Illness in Israel

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Posted 6/25/2018 4:49 PM (GMT 0)
Female 59 - I've been battling something for a few years with every day it getting worse. Today my blood sugar spiked to 187, heart beat 111 and blood pressure went from 135/80 to 117/73 in minutes. I've had palpitations for the last week, there's hematuria (microscopic that's been constant) and more.

These are the symptoms and findings

GFR 70
pre-diabetes
microscopic hematuria
tarchadia - sometimes the heart will stop and then go into extreme fibrilation - this has happened a few times.
fluctuating blood pressure
insomnia
fatigue
bruising on legs
muscle wasting on arms and legs
carpal tunnel
pseudomeningocele - accumulation of CSF at the bottom of my spine post surgery
Uterine fibroids
Frequent UTI's
Tinnitus
Liver cysts
Eyesight worsening
Calcium deposits throughout body seen on CT/MRI's.
Recently chest pains have begun.

Been to rheumatologist - nothing - no RA factor
Been to neurologist - there are deficits stemming from spine and neuropathy
Been to orthopedic surgeon - there seems to be a collapse of the spine, no reason for muscle wasting was given
Heart specialist - wore holter - given angiogram - normal - EKG show arythmia.
Nephrologist declares everything is fine based on my numbers
Blood and urine show some ESR elevation, elevated WBC (for me it was high - it's usually low)
Some cultures come back negative, some positive, lately negative. Hematuria persists
Thyroid was within normal range. I am not anemic that I know of at this time.
In 2000 was bitten by a tick, was given antibiotics at the time.
EBV/CMV positive for antibodies

I've pretty much spent the last year going back and forth from ER's to doctor appointments and the rest of the time I am in a chair trying to *relax*, *breathe* and heal from whatever is ailing me by adhering to a healthy diet, drinking as much water as possible and taking supplements - vitamins, minerals and if needed - herbs for infections. I do not take any other medication - however because of the heart beating so fast, I took one tiny sliver of a sedative today.


That's it. I'd travel if I have to, to the best, but maybe the best is here. I need direction to see how to proceed. I know this cannot go on. Thanks for any input. Best to you all.
Posted 6/25/2018 7:02 PM (GMT 0)
Welcome to the Diabetes Forum, MissBliss. You have quite a few things going on and I'm sorry they haven't been resolved. We are not doctors here, of course. I can only help you with what I know myself about diabetes and blood sugar and the resulting effects.

Blood sugar spiking to 187 is not normal. From what you wrote about the GFR result and eyesight, I'm guessing that you have diabetes and either need medication or a really strict eating plan to keep your blood sugar at normal levels. Normal GFR is 90 and higher. Read this: /www.kidney.org/atoz/content/gfr

The fact that your GFR is 70 might mean that your blood sugar has been elevated for several years. Of course there are other factors that can affect kidney health but diabetes is one of them and this is why we need to keep our blood sugar as near to normal as possible. I am puzzled that a nephrologist would tell you that everything is fine based on your numbers. 70 is not a normal GFR result.

Have you seen an ophthalmologist and had a thorough eye exam? This is not about glasses. There are tests for glaucoma, cataracts, and retinopathy that only an ophthalmologist can do. High blood sugar can cause all of these conditions and there are medications (eye drops and procedures) that are prescribed to get these under control. If I were you, I would make an appointment with one of these specialists asap.

I don't know about the other conditions you describe. I do know that you absolutely need to get your blood sugar down to normal. You can work on this yourself and might not need medication. Please see your general doctor for this.

I don't know about regulating the blood pressure but I do know that uncontrolled blood pressure can also damage kidneys (as well as heart). Do you take blood pressure medication? There are classes of blood pressure meds that also protect the kidneys. ACE inhibitors are one kind of blood pressure medications that do this. I take one of them.

I wonder about the herbs you are taking. They are not usually regulated by any health agency and some of them can affect our health in negative ways. Do you think it's possible that the herbs are causing palpitations or irregularities with blood pressure?

Do you have a good general doctor that can order a full range of blood tests and possibly refer you to specialists if necessary? I think you need to start with some conventional lab tests. If you write what you eat every day for meals, I can help you understand what is best for your blood sugar. Do you test your blood sugar every day?

I'm glad you posted.
Posted 6/26/2018 3:40 AM (GMT 0)
Hi Lainie,

No medications, herbs on occasion. The blood spikes have never been like this before. In the last few months, since getting UTI's and feeling just unwell, based on one blood test that was 110, I asked for a blood monitor, and so have been checking - and this was highly unusual, but because the palpitations were/are out of control I tested. 187, the 175 and gradually it subsided to 135 then to 94, then up again to 103. For the rest of the evening I ate little - just a handful of cashews and some spirulina.

I tested fasting this morning - 103. Did not sleep and again palpitations.


What is interesting about this is that the day before I ate salmon. I never eat it - but I was sort of craving protein and don't eat meat - so indulged. The next day - as written.

So - what did I find on the internet? Apparently, this particular salmon from Norway is factory farmed, laden with PCB and who knows what and can be a direct cause for diabetes. This could have explained the spike. As for the the GFR. I don't know - nobody has been able to give me an explanation. And it is safe to say that everything has been hugely mismanaged.

I don't know how long I can go on like this. I need help. Where to go and how to go about doing it, right now, without family, car or energy in the middle of nowhere is a big deal. There will be no doctor here till tomorrow. My mouth is extremely dry - I drank water but I am afraid now to put anything in my mouth for fear of another spike.
Posted 6/27/2018 12:46 AM (GMT 0)
I cannot find any reference to farmed salmon that you're describing and to be honest I highly doubt there is a connection between it and diabetes.

In any case, can you please write what you eat for different meals? What food are you eating? Do you have any family members with diabetes?

The best food plan for blood sugar/diabetes is a diet with some protein and a lot of vegetables and greens but no starchy vegetables like potatoes, no food made with flour or sugar. Please read the two permanent posts at the top of the Diabetes Forum for some general information and click on the hot link in my signature for information about blood sugar.

You wrote that you had a tick bite and had some antibiotics. Were you tested for Lyme Disease?
Posted 11/1/2020 12:01 AM (GMT 0)

MissBliss said...
Female 59 - I've been battling something for a few years with every day it getting worse. Today my blood sugar spiked to 187, heart beat 111 and blood pressure went from 135/80 to 117/73 in minutes. I've had palpitations for the last week, there's hematuria (microscopic that's been constant) and more.

These are the symptoms and findings

GFR 70
pre-diabetes
microscopic hematuria
tarchadia - sometimes the heart will stop and then go into extreme fibrilation - this has happened a few times.
fluctuating blood pressure
insomnia
fatigue
bruising on legs
muscle wasting on arms and legs
carpal tunnel
pseudomeningocele - accumulation of CSF at the bottom of my spine post surgery
Uterine fibroids
Frequent UTI's
Tinnitus
Liver cysts
Eyesight worsening
Calcium deposits throughout body seen on CT/MRI's.
Recently chest pains have begun.

Been to rheumatologist - nothing - no RA factor
Been to neurologist - there are deficits stemming from spine and neuropathy
Been to orthopedic surgeon - there seems to be a collapse of the spine, no reason for muscle wasting was given
Heart specialist - wore holter - given angiogram - normal - EKG show arythmia.
Nephrologist declares everything is fine based on my numbers
Blood and urine show some ESR elevation, elevated WBC (for me it was high - it's usually low)
Some cultures come back negative, some positive, lately negative. Hematuria persists
Thyroid was within normal range. I am not anemic that I know of at this time.
In 2000 was bitten by a tick, was given antibiotics at the time.
EBV/CMV positive for antibodies

I've pretty much spent the last year going back and forth from ER's to doctor appointments and the rest of the time I am in a chair trying to *relax*, *breathe* and heal from whatever is ailing me by adhering to a healthy diet, drinking as much water as possible and taking supplements - vitamins, minerals and if needed - herbs for infections. I do not take any other medication - however because of the heart beating so fast, I took one tiny sliver of a sedative today.


That's it. I'd travel if I have to, to the best, but maybe the best is here. I need direction to see how to proceed. I know this cannot go on. Thanks for any input. Best to you all.

I've had almost all of these symptoms normal thyroid ekg etc. U can definitely have some type of parasites plus tick bite like I have . I've had 1 positive lyme test rest negative . My bartonella and babesia test was neg bt there are different strains. Antibiotics I've taken over the years no luck I felt worse. Muse waisting is a huge symptom for me and weight loss liver cyst they now found stomach problems. Go natural try sida acuda. If u have a reaction or (herx) to it as we call it , then you'll know for sure these are your illness from the tick bite. My muscle waisting got so bad I'm always pulling muscles and cracking bones. I've been to go, neurologist, rheumatologist with lot normal tests. Go natural herb as most docs and test are unrealiable
Posted 11/1/2020 2:21 AM (GMT 0)
MedicalNerd, yes, maybe she should be tested for Lyme although if she's in Israel, I don't know if there are knowledgeable doctors in Lyme there (and she hasn't been back since she first posted). I do object to your saying that mosts doctors and tests are unreliable though. That is not the case for all doctors or tests.

Hope you are doing well.
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