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Too Sad to be angry right now - liver damage

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Posted 7/19/2007 2:59 AM (GMT 0)
Saw my endo today. My a1c was 7 which was a bit down. She chose to not add any meds since I have continued to lose a bit more weight and exercise 4/5 times a week.

The thing that has rocked my world and shut me down is she informed me that I have liver damage cause unknown at this point and am going to get tested for all the hepatitis's and have an ultrasound of my liver next week. She said that my liver would shut down in 10 years if we didn't sort this out.

If I test pos. for any of the heps I need to stop metformin asap and geesh about all my other meds since they all seem to have a liver warning.

I am so totally emotionally wiped right now. I have been working so hard for the past 3 months since I had my first a1c over 7. For the first time ever I am starting to lose hope. Even my husband seems distant tonight. I think he has had enough too.

I just don't even feel like letting the tears roll right now. Don't see the point. As a counselor I know all the answers but don't care about those either. Right now I am just a sad sad frustrated patient.

Ok... i'm outtie. going to go watch tv and try to refocus my mind on nothing
Posted 7/19/2007 12:06 PM (GMT 0)
Oh sweetie ... you are in my prayers. I know fear ..
Posted 7/19/2007 11:33 PM (GMT 0)
Wish I could say something profound and helpful. You're a fellow human being and you are hurting and I can't offer anything but prayers and a virtual ((((hug)))). Wish I could do more.
Posted 7/20/2007 12:03 AM (GMT 0)

Hi Jules,

I am so sorry you are going through this. I've been there. My liver was OUT of control a few years ago from statins. Even though I discontinued the med, it took three years for my readings to come back to normal. I'm having BIG problems with my cholesterol now, but I don't want to go through that again. I had to have EVERY test on earth for my liver. All the hep tests, negative. Sonograms, the nuclear medicine test with dye, pretty much you name it. The only thing they didn't do was the biopsies, and I told them give me some time. I went on a vegetarian diet for a year, and finally my readings came back down. Also NO tylenol and no alcohol. The great thing about the liver is that it regenerates, so don't give up hope! (((Hugs))),

Bear

Posted 7/20/2007 12:45 AM (GMT 0)
I'm on two cholesterol meds. Thats the frustrating part. How do you deal with one and not the other??? I guess I will have more answers as the tests get going. Or more questions? My dr. said the main thing for me right now is to lose weight. I have lost 30lbs since this time last year. It comes off slower and slower with age.

Thanks for the support. It helps to know that others have dealt with things like this and had a turn around.

Hugs back.

Julia
Posted 7/20/2007 1:40 AM (GMT 0)
Hi Julia,
What are the cholesterol meds that you're on? It was Zocor that got me, but I'm staying away from statins in general because of what happened to me. It is possible the statins are causing it, and most people return to normal after stopping them... I was just not one of them. Keep your chin up, it's VERY possible to turn this around and not have to worry about liver problems. The diabetes meds I'm on have not given me any liver problems, even though I guess I'm prone to it. Good luck with this and let us know how it's going. More (((hugs))) coming your way!

Bear

P.S. If you've lost 30 pounds in the last year, you are definitely going in the right direction! Congratulations! That's a fabulous accomplishment! You can probably turn your cholesterol problems around without meds considering your current progress! Good for you!!!!!!!!!

Posted 7/21/2007 12:15 AM (GMT 0)
So sorry to hear that news, Julia. My hope is that they'll figure out the best meds for you to be on while you focus on your continued success with the lifestyle changes. Kudos to you on the weight loss, too! You should be very proud of all that you are doing for yourself. Seriously, life is known for throwing sucker punches and all we can do is our best to roll with them. We're here for you whenever you need us :-)

Kris
Posted 7/27/2007 9:06 PM (GMT 0)

Listen to Bear.  He is right about the statins.  I took zocor for years and had high liver enzymes.  An ultra sound showed fatty liver (I am obese).  My endo and my primary both told me that the statins can and do cause this problem.  I stopped taking the statins and have added more fruit and veggies.  Basically I'm getting cholesterol readings of 106-197 with the HDL, LDL and trigercides (sp?) well within normal limits.  The 197 reading came about after a period of severe stress.  Another thing to do is really limit your fat intake at least 72 hours before a cholesterol check.  Why?  I have found that if I eat a hamburger or something else high in fat within 72 hours of a test my results are always much higher.  I have had friends who skipped everything high in fat before they  had their tests and their results were also much lower.

One thing I also noticed is that if I use a vinegar based salad dressing on my salad and some garlic for seasoning of my food my levels are also lower.

For the past 3 years I have maintained an average cholesterol reading of 165.  I stopped taking the statins 3 years ago and for the past year my liver enzymes have been in the normal range.

I really hope it helps.

Marburg

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