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31 Years Dilantin Use

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Epilepsy
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Posted 7/9/2008 12:05 AM (GMT 0)
I have taken Dilantin for 31 years.     Over the past couple of years, I have developed a few of the common side effects.   One being the hyperplasia of the gums.   My question is:   Has anyone else who takes Dilantin, acquired any peripheral vascular issues?   
Posted 7/10/2008 1:46 AM (GMT 0)
Psyelipe,

My dad has been on Dilantin for about 30 years and he hasn't developed any peripheral vascular issues.

Beth
Posted 7/23/2008 6:47 AM (GMT 0)
I was on Dilantin for 45 years , fortunately for me , I had been taking vitamin c twice a day to reduce the effect of any swelling the dilantin may cause. I recently completely withdrew the dilantin and my dentist said that my gums are practically normal.
I had successful surgery in 2006, and am still on 1200mg of tegretol a day, but will gradually withdraw from this to.
Posted 7/23/2008 8:06 PM (GMT 0)
nono   nono

It is documented that it is hard on the liver, causes abnormal hair growth (where you don't want it), and/or overgrowth or softening of the gums.

I also want to say that I've been on this drug for 28 yrs and I have my blood monitored weekly and my liver is in good shape.

I see the dentist every 3 months(because of the dilantin he wants to see me every 3 mos.) and my gums show no sign of dilantin use.

I do however have unwanted hair growth (legs, arms, chest, back,)  but bald on the head. (I don't know if thats hereditary or from the drug)My arms and legs are like Robin Williams.

I've noticed other side effects such as stigma (sp) (eyes), paranoia, profuse sweating, poor co-ordination and bad gait, erectile dysfunction, to name a few.

I also take pheonobarb and the only effect I get from that is drowsieness and getting tired. 

Randy (Ontario)

Posted 7/28/2008 5:27 PM (GMT 0)
I have been taking Dilantin for over 35 years. My gums are good, the dilantin has caused the Dentist to have me come more often just to keep it that way. Other than a recent bad experince due to the Dr increasing my Dilantin and making me at a toxic level I have done well on the medicine. I do take phenobarbitol as well I have no side effects from that.
Posted 9/2/2008 3:27 AM (GMT 0)
I have been taking dilantin for 4 years now and it has worked great for me. i take it because i had a brain tumor removed in 2004 and had a grand mal seizure before and after my surgery. My question is are there any women out there with a similar situation to mine who have been pregnant on dilantin? My case is a little different since my seizures were due to a brain tumor. I am nervous that i may have a seizure if i get pregnant. sad
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