Grand Mal's and Scary Side Effects

Hi, I'm new here. I have been having seizures for a little over two years. I have mostly grand mal, but also petit-mal and psuedo seizures. It's like getting in a severe car accident sometimes, waking up and having amnesia. I have many scary side effects from my seizures including, taste of blood, smell of blood, hallucinations, disorientation, and forgetfulness; not to mention the MASSIVE bruising and pain I go through. I've been without a seizure for about 2 and a half months, I am starting to have deja-vu, and I know when that happens I'm getting ready for a bad one. They, (neurologists and doctors), do not know why I am having seizures, they have put me on all kinds of medications, most made the seizures and my awareness worse. I have been prescribed amitriptiline, in hopes of some help, but alas, I am too afraid to take it. Does anyone else have the intensity of negative side-effects I am having, and have you ever gotten any answers as to why and how to help it get better. This disease, (epilepsy), has torn my world apart. I didn't even know who my husband and kids were after one of my last bad ones this last spring. I KNEW that they were my family, they just weren't familiar to me, and most of my 4 year old daughter's infancy is lost to me, I don't remember it. . . Some things come back and some things don't. Any feedback will be greatly appreciated, I feel so lost. .

Nibbor,

What meds are you on? It is a proven fact that some anti-epilectic drugs can cause SHORT TERM memory loss but over the years, you start to remember things that you thought were lost forever.

TRIGGERS ~ There are many things that can "trigger" a seizure such as STRESS (that's the big one), certain smells, sounds, flashing lights, lack of sleep, head trauma, or combination of some of these together.

If you can figure out what your trigger(s) are, maybe you can illiminate it or avoid it.

Randy

Hey you guys, thank you for the responses. I think you're all right, I need to keep trying, I need to find out what the triggers are, STRESS I have always suspected was a factor. And I need to find a second opinion. I really appreciate your help. I'm supposed to go and do a sleep study, they only happen during REM sleep for some reason, and the amnesia? It's lasted a whole week before. It comes back when people say certain words, or mention certain happenings, sometimes that's all it takes, is one word, and a whole memory will come flooding back to me, I know it's all in there somewhere, just the circuits going there get a little fried. Thanks again, and know that you helped, really, I needed to smile this morning.