It just keeps piling on (me)

Nancy,
You sure have been through enough. Sometimes mom's have to be else where when we need them. We are here to listen and care. We may not be your mom but we really do care. Mary

Ginny and JEn,

I know that mom being gone causes more stress on me.

IT shouldn't, but it does.

WE had different people from the church lined up two weeks in advance to help me, you know give me a call, pop in for a while and then stay at night. We had takers, but at the last minute, they bailed out.

They are so paranoid of this seizure stuff, they are stupid abou it.

They don't want to come to stay with me at night, because: What if I have a seizure, they won't know what to do for it, they told me they would panic, etc. There is no need for that, when I have stuff from the EFA all over the house on TC first aid.

They are manking more of this than necessary. My doc knows I get wound up tight when my mom leaves, which is why he said in Novemember no staying ALONE.

The people don't realize that by them staying here with me, it makes me relax, and calm down, and the chances of me seizing are less than they would be had I been alone. But they get dumb.

The AEDs are causing the low thyroid, and I am sure it is part of the problem, because it is a hormone.

Nancy

My mom was able to leave a day early and got her flight changed, so she will be coming on Thursday night at 11 30 pm, so that relieves it some.

Now, I caught some bronchial crud from someone, or my Asthma is acting up.

I have no voice, I can't talk at all, even my coughs are coming out in a squeakish sound. Last night, I couldn't cough at all, and that really got annoying.

I can't take OTC cough things, because my seizures react to that stuff, so I have to lie there and cough all night.

I have had two nights in a row that were broken up so they became sleep-deprived. I haven't had a seizure since that Grand Mal almost 2 weeks ago. But, that means absolutely nothing with my epilepsy, because have 6 types of seizures.

I have some Vicodin for another problem, that I took at bedtime, because the common ingredient Hydrocodone Bitartrate is also the main ingredient in RX cough scrips, and it made it so it wasn't as severe. It acts on the cough center in the brain to supress the reflex. Codeine is the other one.

My throat hurts from my pharynx all the way down my trachea to both sides of where it branches.

Hurts to swallow, or eat anything other than soft stuff.

Nancy

Hi Nancy,

I am sorry you are having such a hard time. It has to get better.
Where do you live? With a name like cajun, I am guessing it may be near me.

I am looking for a new neuro and was wondering where you lived and who you see?

Nikki

epileptic_Cajun said...
My mom was able to leave a day early and got her flight changed, so she will be coming on Thursday night at 11 30 pm, so that relieves it some.

Now, I caught some bronchial crud from someone, or my Asthma is acting up.

I have no voice, I can't talk at all, even my coughs are coming out in a squeakish sound. Last night, I couldn't cough at all, and that really got annoying.

I can't take OTC cough things, because my seizures react to that stuff, so I have to lie there and cough all night.

I have had two nights in a row that were broken up so they became sleep-deprived. I haven't had a seizure since that Grand Mal almost 2 weeks ago. But, that means absolutely nothing with my epilepsy, because have 6 types of seizures.

I have some Vicodin for another problem, that I took at bedtime, because the common ingredient Hydrocodone Bitartrate is also the main ingredient in RX cough scrips, and it made it so it wasn't as severe. It acts on the cough center in the brain to supress the reflex. Codeine is the other one.

My throat hurts from my pharynx all the way down my trachea to both sides of where it branches.

Hurts to swallow, or eat anything other than soft stuff.

Nancy

Nancy

Sorry to learn you are hurting so much.

I make oregano tea with honey for my son both to prevent and to ease the bronchial symptoms.  Taking cod liver oil and extra vitamin C every day through the winter and getting some sun and exercise also helps to support the immune system.

Feel better soon.

 

CHarlie's Mom

I am on state insurace and it doesn't pay for stuff like Amour thyroid drugs.

IT has not caused any problems for me, and the pharmacist, that everyone is different, and jsut because my drug book says use with caution in people wit hknown seizures doesn't mean it will actually cause me a problem.

Allthose herbs you put in that tea of yours, are on the list of no-nos for people with seizures. They lower the seizure threshold and weaken the effects of the AEDs causing break-through seizures.

I can't walk real well right niow, I am still in teh process of coming off crutches after--dating back to last summer 2 broken ankles, one surgery, and then foot surgery last Jan for Plantar fascitis, and then being forced to walk 1 month early when iwas in the EMU, then I was walking around for a while, and then reinjured it, so now, we are on the crutches again, so excerizing right now, is not an option. In April, I will be able to by swimming in my pool.

I live in my pool during the summer.

I live where it has an average summer temp of 110-115 or higher.

Phoenix.

Nancy

Here is a list of Herbal remedies found OTC that people like to think they lessen seizures, when there is no PROOF that these things prevent or lessen seizures.

Kola, Guarana, Bitter Orange, Country Mallow, Ma Huang, Valerian Root, Kava Kava, St. John's Wort, Ginko, Mate, Eucalyptus, Evening Primrose Oil, Ginseng, Eleuthero Root, Hawthorn, Saw Palmetto, Goldenseal, Sage, Thistle, Ephedra, and Licorice, there are more, but I don't have my list of stuff in front of me. This a partial list. Also, DON'T DRINK OR CONSUME ANYTHING WITH GRAPEFRUIT!!! HUGE interactions wtih AEDs.

The information I have says NOT to take "alternative"drugs, as they are being called, because they will cause serious side effects and damage to body parts or the brain. They can cause dangerous BP increases, more seizures, heart problems, low BP, increase in side effects of one drug, and decrease the side effects of another, cause neuro and liver toxicity, and the list goes on.

ALL HERBS ARE OUT FOR the treament of seizures. It doesn't help them or the person having them.

Docs may prescribe you magnesium, B-9 or B-12, or even Folic Acid. Even males get Folic Acid, because if they take Depakote they're going to need it.

The supplemental vitamins prescribed by your doc is merely to make up for the depleted vitamins lost through AED therapy, NOT to prevent seizures from occuring.

DO NOT TAKE ANY KIND of herbal supplement without asking your doctor first.

Self-medication is not a good practice, when our brains are already haywire.

Kitchen herbs that are natural that you eat shoudn't be a problem.

But they are NOT a replacement for the drug therapy.

AEDS are the only thing other than surgery that control epilepsy for adults. Kids can use the Ketogenic Diet.

Not, herbs, or little things that you make up out of things, with oil, none of that stuff. However, cod liver oil is a good thing to take, it decreases the chances for heart disease and heart attack, by keeping you arteries cleaned out. But don't get to heavy with it. it has its own nasty side effects that will keep you close to the bathroom all day.

Nancy