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All my life - Never knew what they were

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Posted 2/13/2005 12:17 AM (GMT 0)
Hey there...I'm new to this website.  I came in search of some information.  All my life I have had this "funny little head thing".  When it would happen, I would say to my parents, "It's doing it again."  We never really looked too deep into it.  As I've been reading through the pages today, I come across a similar description of one of these types of seizures.  It said this is one of the most destructive type of seizure, and will progress further if not treated.  In Oct. of 2003 I had my first GrandMal seizure.  Since that date, I have had 7 more GrandMal seizures.  There have also been numerous "little ones."  I seperate them by calling them little ones and big ones.  It's a pretty scary time for me, but it's nice to know that I'm not alone out there. smurf
Posted 2/13/2005 12:30 AM (GMT 0)
HI Amanda Jane, I am so sorry you have had this so long. Have you seen a neurologist after the grand mals began? Are you on medication?> Yes, those little ones could be simple partial seizures since you feel a funny feeling yet know it is going on and remember it. Hoping you can get help. you sure are not alone. Many here understand!!

Good seizure info can be found in the resources here. The moderator also sends packets to people who ask.
Epilepsy Foundation in the answerplace there also has good seizure info...


Best wishes....
Posted 2/13/2005 7:11 PM (GMT 0)
Hi. I am glad you found this forum. Feel free to ask whatever you want. I have learned so much here. I found out I was having absence seizures most of my life till I was dx'ed 7 months ago after a grand mal. I hope you are feeling well and take care. Tracy
Posted 2/14/2005 6:12 PM (GMT 0)
:-)  I actually have my first appointment with a neurologist on the 21 of this month.  I saw a neurologist in another city about a year and a half ago, when the first grand mal happened, but he told me absolutely nothing.  I'm hoping after a total of 8 grand mals in a year and a half, I will be able to find out something a little more pertinent.  The scary thing is, I have had one while I was driving.  Thank God I nor anyone else was hurt in the incident.  These first steps are the scariest, but are also the most important.  Thanks for being here everybody!!! yeah
Posted 2/15/2005 11:35 AM (GMT 0)
I am so glad you were not hurt when you had one driving!! WOW, that is so scary! SO glad you have a new neuro coming up next week! I hope this one is good and helps you out. I have a dear friend who had weird things all her life and just went to a neuro yesterday for the first time. It was scary for her, but so important.....
Posted 2/15/2005 5:15 PM (GMT 0)
Hi,
Glad to hear you have an appt. no need to suffer any longer. One thing I have found is that 60% of the people that suffer from seizure have completely normal test results, so if that ends up being the case for you don't get discouraged it doesn't mean you don't have them. All my tests over the 4 yrs have been normal, yet my neurologist doesn't put alot of stock in that. He treated me and they've been controlled until recently. I can really relate I had 15 seizures (GrandMal in 3 mo), when they first began. When I have them now they vary.
Hang in there
cm
Posted 2/15/2005 6:19 PM (GMT 0)
Thanks for the space and letting me know that ya'll care in a distant kind of way.  It feels real good to know that I have new "friends" out there with whom I can share some of these feelings and I don't get looked at like I'm crazy.

Posted 2/15/2005 6:21 PM (GMT 0)
folks here do understand what it is like. We have probably all had those looks from others thinking we are nuts too!! Hang in there. Let us know how the appointment goes!
Posted 2/15/2005 6:34 PM (GMT 0)
AmandaJane,

Maybe you should consider not driving at all until this whole thing gets resolved. It's not worth the risk.  Hopefully you'll have better luck with this new neurologist and he can find the right cocktail of meds for you. 

 

When you were a kid and you told yolr parents about this "Head thing" they probably thought that you were making it up for attention cuz there wasn't a lot of info around about seizure conditions at that time.

 

Good Luck, hope your next appt. is favorable.

 

Randy

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