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Question for those who have had Surgery....

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Posted 2/20/2005 8:12 PM (GMT 0)

Minnie66-

yes, my name is Glenda! Hence the name goodwitch.  If you are Dorothy, then I would love to find the scarecrow, tinman and lion among us :-) !   I too have been noticing my memory getting worse and this is really worrying me.  I used to be very sharp and it is depressing to me.  I'm just happy to have found others like me who understand what I'm going through.  My family is supportive but I just didn't have anyone to talk with that really understood!   My husband does a really good job cheering me up - but, you know sometimes I don't feel like putting on my happy face sad    A good cry  every now and then somehow relieves pressure for me  :-)  .  So,  I'm just about ready to melt devil the "wicked ol' witch" once and for all. 

Phoebe-  Yes,  I am seeing an Epileptologist as well as my local neurologist.  But my neuro has basically taken a back seat because he doesn't want to conflict with the treatment.  I'm at a comprehnsive Epi Center that does about 400 Epi surgeries a year and they have a dedicated surgical team that only does epi surgery.  My Epileptologist told me the surgery was "low risk" and he thought I might have a 5% chance of a stroke, loss of short term memory or other problem due to the location of the angioma.  He thought my odds of being seizure-free was 70% or higher because angiomas are such decrete lesions.  I mean, I'm not a gambling type of person, but that's not a sure thing to me.  But it may be my only chance to be seizure-free considering I've already been on 7 different meds in different combinations with varying success.   I'm going to go to the website you recommended.  Thanks for your advise! tongue

Sheena-  Hey, that's funny, I have really funny dreams too.  I never used to remember mine before I got on Lamictal.  So, I think that drug does the same thing to me too.

Posted 2/20/2005 8:37 PM (GMT 0)
Minnie 66 do you reckon it is recurring dreams or deja vu? (aura's or sp's seizures?) cuz I can't figure this one out or do you think its the meds causing the dreams? I can only remember little bits and pieces...never full dream...weird eh? take care! tongue
Posted 2/21/2005 1:55 PM (GMT 0)

You know... I really wish I was a doctor.. Or a genius, or just someone that could answer that question.. because I would love to know the answer !!!  The dreams, and tossing and turning and waking up exhausted... I just dont know... When I go in in March maybe I will have a better answer...I know.. I was tossing the nights I had seizure activity at the hospital last year... Well not literally tossing.. Just kicking my feet in the sheets, trying to get comfortable... feeling like I was having a bad dream, and I just kind of jumped up...Like I was having a bad dream... And I did say to the doc the next day, I had seizure activity at 3 am lets say... he looked at my paperwork, and said YES you did...

So that is why, when I wake up like that I wonder how often now I am having activity at night... that is the most common time to have activity... when your brain is at rest.. the doc explained it to me why, for me to explain the reasoning is impossible... But I would mention it to your neuro....

There are also books you can get at the library to read, not many... I had a hard time finding them... Even if you can get to a bookstore... Online you can find alot of info also.... Or just ask the doc... that is what we pay them for :-)

And yes... it is too weird !!!!

By the way... You arent the tin man or cowardly lion are you ???

Feel good :-)

Posted 3/2/2005 1:04 AM (GMT 0)
March 1,2005

    Hello, for those of you asking about the brain surgery for epilepsy, I had the surgery June 2002 and have done great! I dealt with epilepsy for 30 years before having the surgery. I was dignosed at 11, I had complex partial seizures.  I went to charlottesville Va at the University of Va. Hospital.  I underwent testing for 10 days. on the 10th day the surgeons came in and told me that they had pin pointed the area of the brain that my seizures were coming from. I had a right temporal lobe lobectomy. I had scar tissue on my brain. but since the surgery I have had no problems as far as seizures go.  I did deal with depression and anxiety after the surgery, but that has all passed and my life has changed. I can now drive and do things that before the surgery I could not have done.  If you would like to ask me any more questions about the surgery you may e-mail me at [email protected]  I wish you all the best!

   Mercyme/Cindy

Posted 3/21/2008 7:56 PM (GMT 0)
I had a right anterior partial temporal lobectomy last November. I was diagnosed with mesial temporal sclerosis or scaring of the brain. I had video monitoring, the WADA test, language testing, neurological testing, extensive MRI's etc. prior to surgery. I would be glad to talk to anyone about the before and after of surgery. I only visit the board occasionally so if I don't respond right away I am sorry. Would prefer to talk by phone if there is an interest, as my typing skills are limited.
Posted 5/17/2008 6:12 PM (GMT 0)
J whip....

My daughter is going through testing to get surgery, we are in phase II. Would love to talk to you about it. Please email me at --------@--------
We are going nuts trying to find someone similar to share their story. We are so scared. She had a inner cranial bleed as a baby. Seizures started at puberty, she is now 21. Partial Complex from right temporal lobe. Is going to have Wada test coming up and then inner electrode montioring for 2 weeks in the hospital. Please email us. THank you.

Reason for Edit:

 

Im sorry but we dont allow members to post their email addresses in the forums as this is a public forum and hence anyone can get access to it. Instead we encourage members to add their email address to their profile (By clicking CONTROL PANEL in the blue bar at the top of the screen) which makes it safer. Darren

Post Edited By Moderator (djdaz_1985) : 5/19/2008 3:31:22 AM (GMT-6)

Posted 5/21/2008 2:32 PM (GMT 0)

DebGren

I e-mailed you a couple of times prior to your post being edited. I am happy to help in any way I can. Let me know if you still want to "talk". 

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