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Nocturnal seizures pattern = 10/-12 days why?

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Posted 2/28/2012 2:23 PM (GMT 0)
Interested to hear from anybody else whose seizures follow a pattern. Any ideas as to why. For several years now my seizures have settled into nocturnal type, always between 2am - 4am and following a pattern of every 10-12 days. I'm curious as to know why? Went off medication 3 years ago, feeling much better, but pattern same.

M.
Posted 4/1/2012 9:50 PM (GMT 0)
Hello,

I have only just began having what they tell me are nocturnal seizures.  Like you they always seem to happen about the same time of night around 2 - 3 am .  Why is this ?  Is this the deep sleep time ?

I am on medication which so far seems to be helping.  I have made such a mess of my tongue from all the bites to be honest I am now waking lots as I am afraid it will happen again.

Have you been told what has caused your seizures ?  I had an EEG done but like all my test it came back normal.

 My memory is also bad it's like I am just living in the moment as I remember nothing.

Any info anyone can share with me would be so welcome....

Many thanks D

Posted 4/3/2012 3:12 AM (GMT 0)
Hello
My 28 year old son has nocturnal seizures. His come at 7:00 or 8:00 am . His EEG and all other tests came back normal last year also until he was admitted to the hospital for a video EEG. His results came back as general epilepsy with tonic clinic seizures.
Posted 4/5/2012 6:00 AM (GMT 0)
Hello

Your comment 'I am just living in the moment as I remember nothing' interests me as time goes on I feel more and more the same way. The book by Echart Tolle 'The power of Now' has help me understand better on how to cope
I've never found out what triggers the seizures, I used to think it was stress, tireness, alcholol, but I've been working on those upsets for years using meditation, yoga, tai chi, this has not stopped the pattern but has strengthened my coping mechanisms with the side-effects, physically and emotionally.
rolleyes Michele.
Posted 2/1/2013 12:15 PM (GMT 0)
Weird with the 10 - 12 days. I used to have partials, c/p, 2ndary generalised - during the day and nightime. There was absolutely no pattern - obviously there were issues like tiredness, drink, and eating habits which interfered. I was on 1000 mg Epilim twice a day, 175 mg Lamotrogine twice a day, and 300mg Pregabalin twice a day - total zombie, terrible memory, tired, confused!!! Now been slowly reducing following self medication (whilst keeping the clinic nurse updated). Currently am and pm 1000mg Epilim, am and pm 115mg Lamotrogine, 75mg Lyrica am and 150mg pm.

Pattern has become nocturnal, roughly fortnightly, one about 2am and the other about 8am (going in to sleep and coming out of sleep). There are no terrifying partials (touch wood), they are mostly c/p with 2ndary generalised. I am unaware of them and stay asleep - although I can feel a bit crap in the morning.

Improved lifestyle, decreased meds may have a lot to do with it. I don't think I'll be totally seizure free with my left temporal damage but a nightime pattern is definitely better than them happening any time. Have developed post ictal psychosis though when I've had a cluster and take a short dose of Valium to stay calm and present. Currently pre-surgery but I'm still not convinced that I want to take the gamble.
Posted 3/12/2013 9:57 PM (GMT 0)
For 7 years I thought I was one of just a few people who have nocturnal seizures. Mine are 2-3 weeks apart, usually shortly after falling asleep (which can make going to bed a little scary). my neurologist blamed them on some scar tissue which probably formed when I was an infant (I was a preemie). I've had a sleep deprived EEG, MRI's and several consultaions with dr's, and I'm still not convinced that some little "thing" on my brain is going to SUDDENLY start causing seizures after 35 years. Does any body have non-medicinal experience for control. Or an idea WHY they began in the first place? My last baby was around 5yrs old, I'm still about 20lbs overweight, I wonder if being overweight might be a cause. Any thoughts?
Posted 3/13/2013 5:59 PM (GMT 0)
To m counihan,

I've had Epilepsy now for 34 years and speak from experience.

Maybe you should speak to your Neurologist about sending you for a sleep study to determine what's causing your night seizures and how many you have during the night.

Re: 10/12 day thing, I have no clue.

Re Having seizures during your sleep: Could be due to lack of oxygen to the brain while you sleep from sleep aids such as certain anti-epileptic drugs, sleeping pills, weight gain or severe snoring or some sort of restriction to the airway.

I have been dx'd with Chronic Obstructive Sleep Apnea.
After my sleep disorders test the Dr. showed me the EEG from that one night, I would stop breathing up to 50 times/hour and had 3 seizures and that I was waking up "post ictal" (moody and spaced out) tired,lethargic, (feel like crap)
I have purchased a CPAP machine (Constant Positive Air Pressure)as recommended by my Doctor, which provides constant air pressure and have noticed a vast improvement.
No more snoring (the whole family sleeps better now), more energy when I wake up, better REM sleep, improved memory (less short term memory loss), and most of all ~ NO MORE NIGHT SEIZURES.

Randy
__________________
Diagnosed with epilepsy and ulcerative colitis in 1979,
Been on meds ever since.

275mg-dilantin/day
120mg-pheonobarb/day
3,000mg-Mesasol/day
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