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Experiencing events that are not really happening, epilepsy related?

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Posted 5/14/2013 1:33 PM (GMT 0)
Okay, this is something I have not shared with anyone over fear of being labeled insane, but I just recently started suspecting this is seizure related and would like to see if anyone else experiences this or have heard about it.

Basically, every now and then this...feeling, overcomes my body. I can't really remember well what I think is happening but it is not real, this...event, that I am imagining, is not happening in real life, but I feel something weird and react to it like, hold my breath or feel frightened or get weird shivers all over my body. It takes a few seconds for me to remember this is "one of those not real things", after which i just focus and shake my head until I feel normal again.

This seems to be random, but certain things seem to trigger it very easy, like stepping into a puddle of water and getting my socks all wet. Makes no sense to me, but it's true.

Recently I read it is possible for some people with epilepsy to sense, hear or see things that are not really happening. I am epileptic, and I am now wondering if these things I have been kind of dismissing for years are some sort of seizures, which might mean I have more of them than I have imagined. I am also not ruling out the fact that I am just crazy.
Posted 5/14/2013 5:03 PM (GMT 0)
That sounds, oddly, like what I am doing. The difference is that I am having visual interruptions. The feeling that hits me is like being on a roller coaster, how your stomach flips, only it's in my head, if that makes any sense at all. I get this feeling of "nothing is real" before/during and after the episode. I have no history of epilepsy or seizures in my family. My husband does, though. His mother and brother and, now, our youngest daughter has it, but I have NEVER had it. No o e responded to my thread when asking what it could be, which scares me because, I guess it means no one knows what it is....
Posted 5/15/2013 7:50 AM (GMT 0)
I get a similar feeling during my episodes. The way I describe it to myself is a feeling that I have seen this place or event before, even when the item triggering it is just me opening the garage door to my house like I do every day. Sometimes its not even something I've ever seen before, but my brain makes me think that it is. It's all a matter of short term memory issues and how the brain reacts to having an issue occur. To me it feels like deja vu because I am being told that I have seen this before, as if it is being read in my short term memory and being related to my long term memory, when in reality it is not in the long term memory. I also get a strong feeling of nausea. The two feelings of deja vu and nausea add up and I generally lose a grip on what is going on around me.

My description is a little different, but it might be the same as what you describe. Do either of you ever feel like you zone out or stop making new memories for a short period of time? My seizures usually lasted for 10 or 15 minutes where I was zoned out and pretty non responsive, and then made me extremely tired for a long time afterwards.
Posted 5/17/2013 4:03 PM (GMT 0)
Mine usually only last about 30 seconds, but yes, I cometsly lose grip of everything around me. What your saying is very similar to mine; something odd will trigger it, making me feel full blown de ja vue. Then these images go through my head, WEIRD images that I KNOW I have never seen before, but my mind tells me I have. Afterward, I can hardly speak because I am stuttering so bad, my hands are shaking and my teeth are chattering. I don't feel nauseated but, I feel...off...like the episode itself it's done. I hav been scared before, thinking I am still in the episode. It's kind of like waking up from a lucid dream and still feeling like you're in the dream.
I am setting up an appointment with a neurologist and I am going to find out what is happening to me. This is scary.
One question to both of you, is the feeling you get......addictive in a way....like...you're afraid to have it but at the same time you hope you do. (kind of like riding a roller coaster)?
Posted 5/18/2013 3:40 AM (GMT 0)
I wouldnt call my sensations addictive at all. Everyone has slightly different experiences and a neurologist will know exactly how to interpret it. I know seeing doctors and scheduling multiple appointments is a long process, but it is usually a very successful one. It eventually worked out for me, and I have been seizure free for over a year now.
Posted 5/20/2013 8:35 PM (GMT 0)
I was "afraid" to tell anyone for the longest time the things I've experienced due to not wanting people to think I was crazy. I been seeing a neurologist got diagnosed with grand mal seizures and non epileptic seizures . Due to the questions my neurologist has asked he said he found it critical for me to see a therapist, I get the rollercoaster fellings, seeing things I know that are not there but scares me, feeling sick. I just went to first therapist apt and will be going 2 times a week. I hope you see a neurologist and get the help you need.
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