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Epilepsy and Nutrition/Exercise

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Posted 10/7/2005 2:20 PM (GMT 0)
Hi Everyone,

I know how important diet and exercise are in the treatment of epilepsy. I would LOVE to hear from anyone who suppliments their meds with vitamins and/or herbal suppliments. I would appreciate hearing from anyone who takes the least little thing, even if you are REALLY into herbal treatments. Nothing new-age please, just real, honest-to-goodness nutrition and WHY it works.

Please write back if you have any experiences or advice you'd like to share. If you work with a neurologist who also believes in the healing principles of nutrition, please write back. I'm looking forward to hearing from each and every one of you.

God Bless,

Tony

Post Edited By Moderator (MandiAnn) : 10/7/2005 10:28:44 AM (GMT-6)

Posted 10/7/2005 4:47 PM (GMT 0)
I remember being told or reading something about NOT taking St. John's Wart or Kava Kava.  However, I can't remember if it was because of Epilepsy or because of Dilantin.  I'm thinking, maybe, Dilantin.  I mixed an herb with Zinc one time and got a horrible rash all over my body.  I think herbs are great but you really should be careful and know what you're doing; what you can mix and what you can't.  JMO
Posted 10/7/2005 5:06 PM (GMT 0)
yeah  

Absolutely agree, Mandi.  However, I don't take herbs anymore; haven't for years.  Scared myself with that terrible rash.  It's all I can do to get my Multiple vitamin, Vitamin C and Calcium w/Magnesium down everyday.  I'm terrible about pills and always have been.  I would be in a real mess if I HAD to take meds for some reason.  I really have to thank the Lord above that I've made it to 61 without any health issues (major ones).  Maybe God keeps me healthy so I can be here for my sister and also for my hubby who has heart disease and Diabetes.

 

 

 One day at a time; not countin' my chickens, for sure. nono

  

Posted 10/7/2005 5:59 PM (GMT 0)

I agree about making sure the herbal products we take do not counter-act the meds we have to take. My only problem is finding a neurologist who understands the benefits of natural suppliments, pharamacology, and neurology. Most know the meds inside and out, but not herbal stuff. Has anyone found a doctor who is well verse in both areas???

Tony

Posted 10/7/2005 6:06 PM (GMT 0)
Unfortunately, no.  I have found that most doctors separate themselves from most "natural" treatments; including Chiropractic.  We've come a long way, but not far enough.  nono
Posted 10/10/2005 12:46 PM (GMT 0)
Yes, we have come a long way, but NOT FAR ENOUGH. I've found out too many things in the last year that point to the importance of nutrition and how it plays such a HUGE part in not only epilepsy, but also diabetes, parkinson's disease, and a host of others. I believe every neurologist should at least work closely with a nutrionist or someone who has a PhD in Natural Health.
Posted 11/4/2005 7:12 PM (GMT 0)
To start, check out the book--Ketagenic diet--at your library. NBC Dateline has "Miracle Workers" showed years ago on diet and epilepsy. I have it on CD for my class.
I teach adult community ed--alternative medicine & dietary supplements, PC upgrade/repair.
Posted 11/5/2005 2:51 PM (GMT 0)
I cannot help on the herbal supplements part of this thread as I do not take them, but I will add my .2 on exercise.

I exercise daily and I find it helps tremendously in giving me the energy I need to function through the day...and that can be hard with all the aeds we take. Another important fact I find with exercising is it helps me emotionally...I know that sounds wierd, but it clears my head and gets my mind off of the idea of szs and makes me somewhat "normal"

I have no idea if there is any link between exercising and less szs, but for me, I know I am a whole lot healthier now that I run and in exchange of being overall more healthy, my szs have decreased dramatically.

Kel~
Posted 11/5/2005 4:44 PM (GMT 0)
There is ancient exercise "Qi Qong" similar to TaiChi---simple slow breathing movement. I have seen on TV works like miracle. A woman had difficulty walking (legs crossed and falling every few steps) can walk like a normal person after 3 months practicing two movements(total 8 different exercise movements). QiQong books are available in local libraries.
Posted 11/5/2005 7:33 PM (GMT 0)
Yeah...I am not sure that a specific exercise of ANY kind will make szs go away...but I am all for making myself as a "whole" feel better any way I can...I know breathing exercises can be good for relaxation which is important for anyone with szs, but I also am a firm believer in asking your dr before starting anything new...

i love to run~

Kel~
Posted 11/5/2005 10:28 PM (GMT 0)
Yes, things like meditation, tai-chi and excercise in general can reduce the need for the use of certain medications by helping control stress as stress is one of the main triggers for seizure activity. DON'T REDUCE YOUR MEDICATION WITHOUT CHECKING WITH YOUR DOCTOR.(IMO-based on 26 yrs experience with epilepsy).

Randy
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