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Posted 7/23/2006 7:44 AM (GMT 0)
sad  I'm the son of an Grand Mal Epileptic. I was not able to

 talk about it. If ever a word was said she would get very

 angry. I'm now suffering from post-trauma stress. I've not

 been able to hold a job longer then three months. I need to

talk to someone who understands the emotional cost of being

 a child of a Epileptic. Please understand my mother was not

 well. She got her Epilepsy from brain dammage at birth. Along

 with Epilepsy she had other problems. I do not blame my

 diffculties on her Epilepsy. I just need to work to understand

 the emotional pain I have from not being able to talk about it.

 Few people understand what its like to watch your mother

 have an attack. My Father left right after I was born. Its

 been a long tuff road. But I have a good heart and want

 the best.

Posted 7/24/2006 5:52 AM (GMT 0)

   Thankyou for the message. I'm new to the computer. I've only have had since July 1st. I hope things are well for you. Please post another message if you want to talk. You may not have children but I've had a mother. Others sometimes find the freedom to walk the other way. I know to much I seen the truth. I watched my mother have all her top teeth removed because of side effects of her medication. I don't know everything but I'm tough and I have a good heart. My nerves have been tested and its difficult to relax. Now that someone has reached back to me I'll be ok. Give yourself a SPECIAL DAY  :-)

Posted 7/24/2006 10:51 PM (GMT 0)
My mother and my son have Grand Mal Epilepsy.

In our house it was just a fact of life. Mom has Epilepsy and has seizures sometimes!

It, of course scared us to death whenever she did, but then it was over and the next day or a few hours later, everything was back to normal.

I dont remember really discussing it a whole lot. It was just there.

Edith

Posted 7/25/2006 6:16 AM (GMT 0)

   Edith thankyou for your reply. You have my respect. I can understand your view. Its life and these are the facts. You've delt with everything OK. You don't have to talk about anything. I've spent many years not talking about my pain. I think that if Epilepsy is goeing to be respected it needs to be talked about. Its the way none epileptics will understand. And its the children who had to grow up in two different worlds trying to keep them both apart. That know where a bridge can be built. There needs to be less shock from those who have never seen a seizure and more understanding. My healing would only have value if it also helped others. This is why talking helps it starts to get open the idea of what to do next.

Posted 7/25/2006 4:54 PM (GMT 0)
    Jennifer sorry to hear of your loss.

I'm in my forties and know all to well about being Hush. I've spent my life in shame. So other people wouldn't have to face the truth. What is the truth? Epilepsy has been around along time. Its a fact of life not a flaw. As long as there is a code of silence things will not get better for Epileptics or those close to them. I was not able to ask for help. Somebody might find out my mother was an epileptic. And now I have Post-Trauma Stress. My nerves are tested. I feel that the Adult Stress I felt as a child was rong. Yes people are talking more now. Thats why I'm asking to talk to other ADULT CHILDREN OF EPILEPTICS. So as to understand our gift that is to help those who don't understand. To bring them the wisdom that its ok. We promise not to hide the truth so you won't have to fear the unknown. The bracelets do help alot more than with out thats what EMT's say.         

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