Walking during a seizure?

Have any of you ever walked during a seizure?  I did with the one I had last week with the flashing colored lights and the fog that kept passing before my eyes.   I walked into the kitchen and the numbers on the clock on the stove appeared to be moving. Are there hallucinations associated with some seizures?  Some body please  tell me I'm not crazy. 

Carla

Yes, I am on Topamax and Lamictal.  I was just diagnosed last summer and we are still trying to find the right medication for me.  I did have a few seizures as a child. I do have a great doctor at Vanderbuilt University Hospital.  His nurse is always available.  She gets with him and gets back to me by the next day if not that day.  So, that helps.

I didn't even tell my daughters that I thought I saw the numbers on the clock moving during that seizure last week.  They would really think I had lost it.  I'm 56 after all!

Thanks for helping me feel a little better!

Carla

It does sound like you've got a great support team there, Carla. It must help a lot. A lot of people get to see a consultant once every few months and have to cope alone in between. So well done, Vanderbuilt Uni.

Your mention of hallucinations interested me, partly of an odd experience I had this evening. I'd just had a seizure - which in itself is depressingly familiar, especially the last few weeks. And I became convinced that there was someone or something beside me on the bed. (P.S. there wasn't.) It wasn't an actual visual hallucination like yours. I was just certain that there was something there, something very malevolent. I staggered out of the bedroom and it felt like this thing was following me. Fortunately the feeling only lasted about a minute and I was left with the usual, comforting post-seizure experience - not being able to speak properly for an hour.

I guess that when the brain goes haywire, anything can happen to the senses. When I still had grande mals I often 'heard' music just before passing out. Other people imagine strong smells. So you're not alone. The important thing is that they're linked to your condition, not your sanity. And, most importantly, they pass.

Andrew

This sounds similar to a petitmal seizure that I get sometimes.

This is my own experience only so draw from it what you wish or maybe you can find some similarities.

I've had epilepsy since 1979, controlled by meds. I get a form of petit mal seizures that my Dr. calls "speech arrest". It only lasts a few seconds, I am aware of what is going on around me but I can't respond. When I try to talk, my speech is slurred (more than usual). Most people have no problem speaking but I have to concentrate to form every word. (all the time but twice as hard during a speech arrest). Everybody thinks I'm stoned all the time. Boy, I didn't realize that we take our speech for granted so much.

 Randy

another day,

I'm sorry to hear of your delema, wow, you've been through a lot of crap. I had a similar situation, I was 47 yrs old at the time.

My "Speech arrests" were affecting my job. (dealing with public on the phone) and my employer of 30 years gave me an ultimatum ~ take the medical retirement pakage or train for a different position with-in (I was an Administrative Manager for the Government of Canada ~ but I had a neuro/psyc evaluation and it was determined that due to the long term use of the meds, I did not have the ability to learn a new job) or get laid off and try my luck with another Gov't Department that would pay me at the current rate.

I took the medical retirement.

It is against the law in Canada for an employer not to hire a potential applicant because of a known seizure condition. It is a form of disrimination and violates the "Canadian Human Rights Act"

By law the employer must provide adequate working conditions or supply special needs as/if required to effectively do the job, even if that means restructuring the work area.

However, if a case like that ever went to court, it would be awfully hard for anybody to prove that they were denied a job for THAT reason, therefore cases like that usually go unreported.

Randy
diagnosed with epilepsy and Ulcerative Colitis in 1979
- current meds are:

275mg dilantin/day
120mg pheonobarb/day
3,000mg Mesasol/day

           Hi,I also walk when I have a seizure.I didn't know that until about 2 years ago when I woke up in my daughters bed with a terrible head ache.I have also walked up to my kitchen and got "sick"in the sink,walked back to my bed and went back to sleep.The scary thing was I had no idea of any of it until I got up the following morning and seen the mess.It still amazes me that someone can have a seizure and maybe walk through a house,or fall off a bed,of even pee in the bed and NOT even remember anything.I'm 34 and have had epilepsy all my life and I still get amazed by "it" sometimes.I've had a temporal lobe surgery done back in 2000,a VNS put in back in 2005 and I am on 4 different meds.19 pills a day and I still and probably will always have break through seizures.Don't get me wrong with my surgerys my seizures are almost nonexisting BUT I still have one from time to time.I wish you well,and good luck to all.

                                                         Michael