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Any1 have a Seizure Disorder and then Panic Attacks Started Later?

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Posted 4/2/2007 12:22 AM (GMT 0)
Hi I am Derrick,

I started to have Auras at 25 and at 26 they started to full blown seizures where I would pass out and have convulsions. Now I am 27 and I am having Panic Attacks is what the Doctor says I am having but it also feels like I cant breath and they are coming so regular I have no life now. Does someone know what could be wrong with me or what I could do to make things better? I assume since the Seizures started as they did midlife and the Panic Attacks or whatever happens to me where I have to go to the Emergency Room 4 Times a month. It has to be something wrong with me the Doctors cant give me an explanation on. Can someone please help me? God Bless.

Posted 4/2/2007 2:06 AM (GMT 0)
Hi StressInNewYork,

 

Just wanted to let you know that I am in the same boat you are right now.  I have simple partial seizures that give me the strange deja-vu auras and weird smells.  No convulsions or blackouts.  But they're really distracting.

 

Since my current seizure med isn't working anymore, I started to taper off of it.  Now, I am also getting anxiety and panic-like symptoms.  I'm not sure if they're from the seizures, or the withdrawal of the med.  I am seeing my neuro this month to go over all this stuff.  The anxiety is causing me depression and it's driving me nuts.

 

I'm 33, but my seizures started when I was 28.  I had a stroke, and the stroke left me with these seizures (thanks a lot) hehe....

 

So, I wish I had some advice or ideas for you, but instead I wanted to let you know you're not alone with this conundrum. I'm sure there are others as well who can chime in on this.  Just keep pestering your neuro for tests and support.  This is a good place to get support too.

Blessings,

Ginny 

 

 

Posted 4/2/2007 2:35 AM (GMT 0)
Hi thanks for your Post on HealingWell.com

I am so Stressed out from this which it makes me have the Panic Attacks and some Seizures Im sure. But also I cant seem to find out why I am having the Seizures which yes started like yours the Auras' as Deja'vu or some type smell. But they mostly start as a feeling of electricity running thru my Brain. Then it stops after a few seconds 5-10 seconds and sometimes when i feel that I pass out into a full Grand Mal and sometiems I dont.

But I am so depressed now it is un-explainable because this is for a reason and I can feel my body continuously breaking down getting worse from what ever condition I am going thru. I dont want to be one of those unfortunate people who find out what is wrong with them after they are half retarded or somethin g worse you know like Heart Attack or Stroke I have done Major Test.

Thanks so so Much,
God Bless
Posted 4/2/2007 3:41 AM (GMT 0)

Derrick,

I wish I had some words of wisdom for you.  I am 56 and was diagnosed last summer.  I go in and out of those crazy spells too.  I can't imagine having the panic attacks on top of the seizures. 

Maybe I can make you laugh.  You are not mid-life unless you are not planning on sticking around long.  So get over yourself on that mid-life thing!

I think you will find this forum is somewhat like a help line.  It has been very helpful to me. 

I am very fortunate to have a neuro that is easy to get in touch with.  I live in KY and he is about an hour away at Vanderbilt University Hospital.  We are still trying to find the right medication for me.

Are you comfortable with your neurologist?

Carla

Posted 4/17/2007 10:05 PM (GMT 0)
Derrick - the same thing has happened to me with panic attacks. I was diagnosed with a brain tumor 20 years ago. Had it removed successfully and was on Dylantin/Mysoline combo. I think I would have stayed on this medication forever but it really effected my blood count so they migrated me over to Keppra. When I was on Mysoline I would swear my skin crawled and my breath became ragged and I would literally have to sit down somewhere anywhere convinced I was having a seizure. Had not had one in 20 years but was convinced this was it. I really felt a panic attack come on and felt like I was going crazy. After switching to Keppra this has all but stopped. I still get a little jittery at times on Keppra but nothing likethe Mysoline/dylantin episodes.
Posted 4/19/2007 11:21 AM (GMT 0)
Hi there Derrick,

Other than going to the ER, have you been able to get meds to help ease the side effects of the seizures and/or panic attacks? This is something that I dont have personal experience of but I know people who are in the same boat as you. (And im sure there are many on HealingWell as well) It is important to remember that you are not on your own with this and there is support out there every step of the way. If the doctors are unsure of a diagnosis, you may have to push quite hard to get them to make the neccessary effort to get things cleared up. But it will be effort well spent.

I hope you can get a diagnosis soon so that you can be on the road to improvement soon.

Darren

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