Hi there and Welcome to HealingWell,
I am sorry to hear of the nature of your epilepsy. I can imagine it must be very frustrating for you knowing that it is something that you are not going to grow out of. Are you able to get some control via convential meds? Are there any natural treatments that can be followed over the internet? I would have thought that basic stuff like diets can be managed online.
I hope you find the support you want on HealingWell. We are a really friendly bunch here.
Darren