i know something is wrong

hey peeps, i got a problem. i know something is wrong with me. i used to be on keppra for two years before i was taken off in march this year (ive been seizure free for two years now) but now i get these weird feelings. whenever i go to the bathroom to urinate i start.. twitching or shaking like im going to have a seizure but it passes. it happens almost everytime i go to the bathroom. i also start twitching when i dont get enough sleep. i go to school sometimes and while laying my head down my whole arm just jerks(i guess i should probably get more sleep then). but still i feel really weird right now. i feel like any part of my body could just jump. does anyone know whats going on? i know somethings going on.

Hi There,

A lack of sleep is one of the more common triggers for seizures along with flashing lights, stress etc... so that wont be helping you. I get twitches occasionally but nothing particularly exciting so im not sure I can help on that front. My seizures are grand-mal so this may make a difference.

Darren

hi again all, i looked it up and it does sound like im getting myoclonic seizures. i used to get simple partial seizures every day with the occasional complex seizure every couple months. i dont get any anymore except for what i described (the twitching and the arm/leg jerks). it could be the lack of sleep and the stress im getting but should this really be happening? im done taking my meds so this shouldnt be happening, right? i dont want to go to talk to my doc about it because he will just put me back on the keppra and i dont want to take anymore pills.

Anonymous Me,

I thought you were describing myoclonic seizures.  Yes, you do need to get in touch with your doctor.  I think I mentioned to you before that I was just diagnosed last August at the age of 55  by doing the four day EEG.  Before that, I did not realize that I was closing my eyes when I was having these seizures.  You have to think about the fact of having one when you are driving and a little child runs out in front of your car, would you be able to stop?  I know the monoclonic seizures are very brief, but you have to have them under control to drive just like all the other seizures.  When I was still trying to work last year before I was diagnosed, I was sitting at my desk having myoclonic seizures all day long, the worst part was that they were affecting my speech which was very difficult for me.  My mouth would start twitching and seem to get stuck when I was trying to communicate with others at work.  So, another point is that they can get much worse than they are now.  I strongly urge you to see your physician.  I know you don't want to.  I don't want to go back in for another four day EEG and some other tests,  but I'm going.  Epilepsy isn't a lot of fun, but it could be something worse.  So, you call your doctor and I'll go be wired, videoed and monitored next month.  Deal?

Take care!

Carla