I usually post on another forum but I need some advice. I have a 35 yr old son with epilepsy. His seizures are under control. He hasn't had one in about
3 1/2 years. He takes lamictal, keppra and zonegran all very big doses but he is used to the meds so he wants to stay where he's at with them. He has become a germaphobe. I'm sure it has become OCD. He washes his hands constantly and they are red and chapped. He takes a shower for at least 30 min. in the morning. He won't touch any thing I touch even though I prepare our dinner. I am trying to get him independent so he can eventually live on his own. I don't know if he will ever be able to do this without going to a group home. He has a full time teacher's aide job and he doesn't make enough to be on his own. He does have health insurance from his job which he desparately needs and he also has drug coverage but his meds still cost him about
$260 a month copays. Because he needs to feel so clean he is not getting to work on time and I am afraid he is going to lose his job. And then he will lose his insurance. Without insurance his meds will cost thousands and I can't afford to help him. I am living on SSI. He gets up at 5:30AM and has to be at work at 8:00AM. Nothing I tell him seems to sink in. I keep warning him he can lose his job but he just can't seem to move any faster. I don't know what else I can do to convince him he needs to get to work on time. He has held this job for 10 yrs and he was never late until this year. I am working with an epilepsy couselor from the Epilepsy Foundation but so far she hasn't been much help. I am not going to live forever. I am 63 and have bad asthma and have also had cancer. He has very few friends so there is no possibility for a roommate. And he wouldn't want one he says. He doesn't know how to budget or do anything on his own. I am trying to do the best I can to teach him things but he always ends up getting angry and fighting with me. I have to leave the room then. If any one has a few suggestions on how I can handle this problem I really would appreciate some help. Thanks in advance.
Aurora