Posted 6/23/2011 6:40 PM (GMT 0)
I have a very complex situation and have multiple diagnoses CFS/FIBRO/POTS. I also have PTSD.
I will describe my symptoms and hope that someone who has familiarity can guide me.
First off I either smell things that aren't there or I get an intense numbness around my face ( sometimes with a headache). For someone who isn't very calm at present. At the weekend I had an aura of calm before the brain activity started. Most often it is only facial numbness with seizure-like episodes during sleep. It has however changed and my hormones are affecting whatever is going on. Last month I had the numbness, twitching/spasms in my temples and my feet were convulsing My breathing was also affected and I felt constriction in my throat. I went into a panic attack and phoned the GP who said I had a sensitive nervous system- pffft. This month my face went numb spreading. I got off the pc and lay down quiet but i seemed to pass out and jerk around - I do have some awareness in these episodes. They also seem to affect my ability to walk afterwards like my legs are weak/loss of balance & nausea and generally feeling very scared. Neurology I havent seen since 2008 but this type of thing wasnt occuring then. I had a normal brain MRI. These episodes seem to affect my heart too, it slows down. I don't know why my hormones are affecting me like this. The doctor is suggesting the progesterone only pill. I have no idea what I am dealing with but that I need some support. I keep thinking I am having TIA or other. They have said complicated migraine but this stuff is starting to scare the **** out of me. Can anyone identify with what I have described. Much appreciated in advance. Thanks