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clicking/ringing/crickets/cicada like noises in the ear prior to anykind of seizure

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Posted 9/5/2011 1:17 PM (GMT 0)
Hey all i'm new to this site and newish to being dignosed as an epileptic tho i've been having seizures close to 2 years now, in those two years it's been a very complicated time for myself (as i'm sure you all have your own stories to tell) i just want a few q's answered if anyone can relate knowingly my neuro cannot.

Since i was about 8yrs of age i've had tinnitus issues ringing in the ear etc and mid ear probs infections blah blah blah i had grommets put in last month tho my tinnitus hasn't stopped what i want to know is, is it tinnitus or are these noises that i here daily that becomes deafinning prior to a seizure actually a Neurological issue not a hearing issue? i've been told it's an aura but i get a weird sensation with aura's, if your ever had special k thats the closest i can relate it to but thats seconds before a seizure, why are my ears zapping clicking etc on a day to day basis and why does it intensify in the days prior to a seizure why can i tell if i'm going to have a seizure a few days prior and when i do have gm's or even a partial seizures it's always the same build up of noise etc 

Posted 9/5/2011 1:35 PM (GMT 0)
If it helps i had my 1st ever gm at 27yrs of age
Posted 9/5/2011 7:50 PM (GMT 0)
Hi Brendo and welcome to HW!

Has your ENT specialist offered any explanations? I haven't heard of an aura that goes on for days before a seizure. I think your doc should investigate further.

Take care!
Posted 9/6/2011 1:15 AM (GMT 0)
Hey Roni thanks for the reply 

 

It was the ENT who told me it was an aura, it's supposed to be the muscles in and around my neck starting to retract and release which makes my ear drum shutter thats where the loud noises come from prior to a seizure, and the noises i hear from a day to day basis is supposed to be tinnitus tho he couldn't tell me why it intensifies in the days leading up to a seizure, what he could answer makes sence, i just want to know if anyone else experiences this and if so what have their specialists told them it was? my seizures always happen as i'm drifting off to sleep or normally in the early hours of the morning i wake up with that feeling ive said


Post Edited (Brendo) : 9/5/2011 7:43:15 PM (GMT-6)

Posted 5/12/2012 11:30 PM (GMT 0)
Hi. Yes I have a similar problem and it's very new. I'm 26 and I've only been diagnosed with epilepsy not even a year yet, my first big seizure was Jan 2011. Mine is sound triggered mostly they happen during the night I wake with sudden roaring in my ear or in the morning as I wake up. I can trigger it myself when sitting in a quiet room by a sudden noise like my phone, computer or even my own voice, in contrast to the quiet environment the sounds seems intensified and will cause a buzzing, clicking and roaring in my ear as well as the left side of my body going numb. I have a few seconds to shout for help before it gets so loud I black out and start to fit. The sound is hard to describe, it's become familiar and rythmical like music but theat is possibly my heart beat and blood I can hear, and I'm curious everytime to figure out what it is but becomes so overpowering and knocks me out. Sometimes I only get partials where I get the noise only and then fades out, I'm thankful for these but they are still as equally frightening. Me and my doctors are totally baffled by it, it's hard to describe and hard for them to understand. These buzzes in my ear started a couple of years ago, I got my ears checked for infection but all was ok and my GP thought it might be tinnitus also. However these 'ear buzzes' appeared more frequently and have gradually become more severe to which I am now on anti-convulsion medication! I had hearing tests which came out fine and so the ENT concluded my ears to be fine so the sound and pain I experience is possible the way my brain is processing sound. I seem to struggle and fight this now everyday, medication has changed it slightly and I dont get triggered as often as before but I know the day before I have one because I seem to spend the whole day fighting it, then the second I wake up in the morning BOOM it hits me, I wake up to this roaring noise like a multitude of different sounds all at once increasing in volume. Is this similar to you? Or does anyone else have this? It's a horrible aura to have and I am already sick of it, please can anyone offer any advice or similar experience? Thanks A.
Posted 5/14/2012 12:51 AM (GMT 0)
 Hey AndieWendy 2 1/2yrs on and someone who can relate, i so cant believe the similarities in our Ep i'm sorry to hear confused , i'll explain mine a little better and in detail, in the days leading up to a fit i dream like i've never dreamed before but i struggle to remember any of the dream, each night is the same dream, when i wake up i feel more and more fatigued each morning, a random burning tingly feeling (like when you get nervous but x10) comes with it intensifying each morning i wake till the day of a fit, during the days i put up with a shooting pain in my head (crampish like) it's mainly in the back of my eyes, jaw and in back of my head, i get a high pitched ringing in the ears with sudden zapping like noise that almost knocks me off my feet (vertigo) and other noises i struggle to describe though i have heard them during a hearing test (via the machine they use) umm heart pulpatations etc ok i'll leave that there, during an aura of a seizure, i will generally awake from sleeping with almost every noise from the hearing test machine going off in my head at once lol i get a lost kinda feeling (like that gut feeling) my heart races and my right side of my body generally cramps, i normally have a miniute or so till it all either becomes overwhelming and i pass out, or i just stops, when it becomes overwhelming and i'm about to pass i get this weird chemical smell and some kinda music beat a dream thingy starts i cant talk (the words don't come out and i stuggle to even think of anything to be able to say) and yeah you kno the rest, AndieWendy one thing i want to know, you said you wake up then boom it hits you (i get that) but next time concentrate on the noises, do they start off like there in the distance and rush upon you??  (that happens to me) my mri's are all inconclusive as was my 10day visit too westmead hospital strapped to the eeg machine being tortured lol kept awake using flashing lights etc all the test they do to provoke a seizure that didnt work i didnt fit another time i took a machine home overnight and nothing happend on another occassion at stg hospital they strapped me up and tried to provoke a seizure only to fail to do so (mind you i was withdrawing at the time from keppra and epilim fitting 5+ times a day).. I think we could be of assistance to one another seeing the similarities of our set backs, the doctors cant relate and i'm sick of trying new meds all the pharken time that don't work (i kno everyone is different), they doctors have no idea whats wrong with me!! at first i was lieing then it was stress then it was my ears lol i showed my 5th neuro footage and now i'm an epileptic *** lol 
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