HealingWell
Search Close Search
☰

Fear & Seizures

Support Forums
>
Epilepsy
✚ New Topic ✚ Reply
❬ ❬ Previous Thread |Next Thread ❭ ❭
Posted 6/17/2012 10:24 PM (GMT 0)
I was diagnosed with seizures when I was 13, which were then controlled with tegretol until my parents hoped I had out grown them and withdrew the medication.  It worked for some time but then the seizures came back which I was then on tegretol again but not as controlled.  Fear from what made them worse kept me from telling the doctors.  At about age 26, I switched neurologists, who put me on Keppra, which controlled the seizures.  I have had only one in almost 2 years, but now I am dealing with this crazy fear and anxiety from just the knowledge of having this disorder and fear that Ill have one that I get what I call panic attacks daily for about the last 9 months.  My neurologist does not believe them to be seizures as it is from my thinking about them that I feel this way, so its almost as if i bring it on upon myself.  It is never brought me suprise, its always my thinking and it totally brings me down.  It feels so hard to enjoy life living in fear and I am hoping talking to others with similiar situations can help me as I feel so embarrassed by my condition that I dont talk to anyone except my doctor about them.  I just dont feel like I can vent to anyone but I am hoping others opinions and suggestions could help me.  Please let me know any advice you may have.
Posted 7/6/2012 8:01 PM (GMT 0)
Thank you for sharing your story, I also suffer from panic attacks. Although I wasn't sure what they were at first and I was scared and emotional at times where I felt I may be having a heart attack because of the pain. My doctor suggested to me that I try to remove myself from stressful situations. Although it sounded impossible because the stress was related to my children, I was able to find time where I was able to take a break now and again and took that time to breathe and listen to slow moving music, such as Enya. I hope this helps, take care dear.
Posted 7/8/2012 11:46 PM (GMT 0)

liz98211 said...
I was diagnosed with seizures when I was 13, which were then controlled with tegretol until my parents hoped I had out grown them and withdrew the medication. It worked for some time but then the seizures came back which I was then on tegretol again but not as controlled. Fear from what made them worse kept me from telling the doctors. At about age 26, I switched neurologists, who put me on Keppra, which controlled the seizures. I have had only one in almost 2 years, but now I am dealing with this crazy fear and anxiety from just the knowledge of having this disorder and fear that Ill have one that I get what I call panic attacks daily for about the last 9 months. My neurologist does not believe them to be seizures as it is from my thinking about them that I feel this way, so its almost as if i bring it on upon myself. It is never brought me suprise, its always my thinking and it totally brings me down. It feels so hard to enjoy life living in fear and I am hoping talking to others with similiar situations can help me as I feel so embarrassed by my condition that I dont talk to anyone except my doctor about them. I just dont feel like I can vent to anyone but I am hoping others opinions and suggestions could help me. Please let me know any advice you may have.

I was diagnosed when I was a baby(45yrs.-old this year). My seizures are controlled by Carbatrol. I know what you mean about how hard it is to enjoy life. I also don't tell anyone other than family and doctors.

Post Edited (Chris516) : 7/13/2012 8:14:23 PM (GMT-6)

✚ New Topic ✚ Reply