Our son who is now 22, has Lennox-Gaustric Syndrome, was born with a rare syndrome, and is special needs. he is now booked for corpus callosotomy. We have been dealing with szs. since birth, tried 13 medications, nothing has helped.
Would love to hear from those who have had this surgery. I realize everyone will have a different experience. He is having a complete one, not partial.
How long was the surgery?
What was it like after the surgery while in hospital?
Any problems arise after surgery in hospital?
pain?
How big was the cut?
Side effects after surgery, in hosiptal and at home?
It was a long hard decision to do this, but with his bone density going down, we can not afford for him to fall hard much longer, he wears a helmet full time, we know this surgery will not cure him, but hopefully help.
Love to hear your stories on this surgery. thanks